Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-01-2011, 02:14 PM #11
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I edited Drs name to Dr P for this instance anyway, less chance of being caught in web searches. I think I got all posts.
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Old 11-01-2011, 02:25 PM #12
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Originally Posted by Jo*mar View Post
I edited Drs name to Dr P for this instance anyway, less chance of being caught in web searches. I think I got all posts.
Thanks!

I'm pretty open and honest about everything, but being a little incognito is a good thing.
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Old 11-01-2011, 06:02 PM #13
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Thanks!

I'm pretty open and honest about everything, but being a little incognito is a good thing.
It's a wonderful trait as a human being, just not as someone protecting themselves in the CA WC system.

By just leaving out a few small details in your narrative, makes it much harder to figure out who you are, but still provides all the pertinent details!
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Old 11-02-2011, 08:59 AM #14
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Originally Posted by LIT LOVE View Post
It's a wonderful trait as a human being, just not as someone protecting themselves in the CA WC system.

By just leaving out a few small details in your narrative, makes it much harder to figure out who you are, but still provides all the pertinent details!
Definately!

I saw another pain mgmt doc yesterday and she said that the second block working for a few days was the most important diagnostic test for CRPS and scheduled me for my 3rd block this morning. She also gave me a dvd to watch regarding a spinal cord stimulator? That's where she wants to move on to next. After my procedure I'll be headed to see Dr. P. I feel like I'm spending my life at the doctors but I also feel more hopeful than ever and the last few docs seem to GET the constant burning pain that makes me so crazy.
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Old 11-02-2011, 01:58 PM #15
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Definately!

I saw another pain mgmt doc yesterday and she said that the second block working for a few days was the most important diagnostic test for CRPS and scheduled me for my 3rd block this morning. She also gave me a dvd to watch regarding a spinal cord stimulator? That's where she wants to move on to next. After my procedure I'll be headed to see Dr. P. I feel like I'm spending my life at the doctors but I also feel more hopeful than ever and the last few docs seem to GET the constant burning pain that makes me so crazy.
The SCS is a tough call. I'm struggling with the idea as well. Ketamine before SCS is kinda where my head is at. Regardless if I have to go OOP.
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Old 11-02-2011, 01:59 PM #16
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Originally Posted by JimsGirl View Post
Definately!

I saw another pain mgmt doc yesterday and she said that the second block working for a few days was the most important diagnostic test for CRPS and scheduled me for my 3rd block this morning. She also gave me a dvd to watch regarding a spinal cord stimulator? That's where she wants to move on to next. After my procedure I'll be headed to see Dr. P. I feel like I'm spending my life at the doctors but I also feel more hopeful than ever and the last few docs seem to GET the constant burning pain that makes me so crazy.
Make sure you do a very extensive research on the spinal stimulator both pros and cons. The DVD given you maybe all pros, trying to sell a product. NeuroTalk has a Spinal Stimulator thread.
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Old 11-02-2011, 03:42 PM #17
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Make sure you do a very extensive research on the spinal stimulator both pros and cons. The DVD given you maybe all pros, trying to sell a product. NeuroTalk has a Spinal Stimulator thread.
And discount any SCS user's that do not have RSD as well. Comparing the experience of the two isn't appropriate...
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Old 11-02-2011, 03:48 PM #18
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You guys are braver than I am...
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Old 11-03-2011, 07:32 PM #19
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You guys are braver than I am...
How so?

I had the third block with no relief. I saw Dr. P and that was interesting. In the town I'm from I'm the worst case (and I Know there are people with worse cases) that any of my docs have ever seen, so they're super sympathetic, etc. But of course, with Dr. P, I was practically mild, like having a touch of RSD. He was very arrogant. And his interns...oy! Anyhow, he did include my family in the treatment plan, and that did mean a lot to me. I go back December 5th and 6th to have another nerve block done.
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Old 11-03-2011, 08:55 PM #20
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How so?
Because my neurologist suggested that in my case I should consider a SCS but I'm too chicken
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