Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-25-2011, 04:55 AM #1
kimberlyluv kimberlyluv is offline
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Join Date: Oct 2011
Location: utah
Posts: 11
10 yr Member
kimberlyluv kimberlyluv is offline
Junior Member
 
Join Date: Oct 2011
Location: utah
Posts: 11
10 yr Member
Frown need a doc

i have rsd cprs 2 in my legs and right bottom i can not sit down have not for seven yeras because i got a injection in my buttocks instead of the hip like suppose to and the medica she used she did not dilute it so it also fried my sciatic nerve walked in the insta care could not walk out been on crutches and have not sat or put pressure on that side dont lay neither i lean! anyway it has spread to my left leg and starting go in arms and hands over 7 yeras im tired run down barly hanging on hard on kids but my doc that specali in this has retired he was one of the main docs in ut county that new alot about it! so if anyone knows of a doc in utah county let me know cant live with this pain i get about 2 hours of sleep if lucky in 2 weeks even with pain meds and sleeping meds the pain is so severe no insurance but have been declared legally disabled cant get on medicare yet so redoing medicaid again was on it but have to redo so have not had insurance for months again that has been alot of my problems trying get help wanted to try the stimulator now there saying only medicare pays for it or its alot of money and i prob wont bennifit from it because of how many years i have had it and how severve it is did try the calmare treatment last week but went to a doc who brought the machine in for me to try but the sales people ran the machine because the doc did not no how to yet so i just say was not a good experience it hurt they could not find the right spot made me feel bad because they could not go higher with the voltage so i said fine go higher wrong thing to do! so i am going to try it at the u of u where they say a doc there knows how to run the machine i never got relief at all from the first time last week but could been because they did not do it right! also was told by my doc before he retired and the doc who brought it in his office in provo ut for me to try said dont know if will work i am a hard case from all the damage and how long it has been and when it first happened little over 7 years ago had no insurance and where i got the injection from the nurse who did it in wrong spot and was not certified to do them i did not no at the time and did not no at the time the doc had been introuble alot also and had hurt other patients well of course they did not care to help me told me he did not have a miracle pill and to leave so low income no insurance i was limited to what i could do! now i feel like i am back to square one and trying to find another good doctor who specaili in this the one doc in provo who brought the machine in for me to try is a pain doc its a nexus and he has seen me for free couple times but said i would not benifit from the doctors there because they try more nerve blocks different things like that and it would not help me he is calling around to try and find one also but if anyone does no of a doc in utah county let me know i would rather go to one that knows more about it then one who dont
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