Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-13-2011, 11:32 PM #1
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Blocks need to be treated with respect. The experience of the doc with RSD, the time he spends, the meds he uses--all make a difference. This is your spine we're talking about! But, it is an important tool as well.

For the OP, was this a stellate ganglion block? I had a radiofrequency neurotomy that was a described as a longer lasting, more intense block, and I had horrible side effects...

How bad is the swelling? The severity is key.

If he's suddenly able to move it after long disuse that could account for some swelling and that in turn could cause numbness. The twitching could be a result of the nerves finally getting messages after so long a period of dysfunction.

Get him in to the doc that performed the block asap. Get a second opinion if he doesn't relieve your concerns.

5 blocks, especially in a short amount of time, can cause scarring on the nerves. This maybe should be his last... But, they might be finally starting to have a positive cumulative effect...
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Old 11-14-2011, 12:48 AM #2
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Dr doing blocks is not his treating dr and i dont think he has much knowledge of RSD.
His surgery was over 6-7 months ago so it isnt like has gained any ROM he has been out of a sling full time for quite awhile.
he sees the back dr tomorrow and i will get with the shoulder dr inthe am
the swelling was more than normal and also in a new area. now with the arm on verge of falling asleep has me concerned that maybe they are doing more harm than good
he is supposed to have the last 2 blocks tuesday and friday. i think a follow up visit is called for even tho he isnt done.
since this is workers comp we dont get the luxery of going to other dr's until we are referred. Otherwise I would just schedule him with a expert in RSD or at least as close as i could find. Grrr
His treating Dr has treated RSD patients though i found out but he is a Orthopedic Surgeon. Think with what is going on he will send hubby to another Dr for the RSD he was trying to stop it so he could do surgery to fix the shoulder and I just dont see that happening.
thank you all for your responses they are most appresciated
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Old 11-14-2011, 09:56 PM #3
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Well all, I called his Dr this am and spoke with his nurse (she is familiar with RSD I was impressed) Anyway I told her what had been going on and she got with the Dr and called me back.
Dr cancelled the last two injections and wants to see him tomorrow. I will be going with him and am anxious about what he recommends next
Wish us luck!
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Old 11-14-2011, 11:38 PM #4
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Good luck at the doctor's. Let us know how that turns out. I had a bad reaction to a block and it made my RSD worse...but I hope that is not the case for your husband. It may just be that he's not getting enough relief and it's time to try a different treatment. Good luck...I really hope they are able to find something that helps your husband. Sometimes it's just a lot of trial and error to find exactly what works.
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Old 11-14-2011, 11:49 PM #5
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I believe well I know the shots just made him worse. I fear they have sent him on a slippery slide,he won't recover from.
He saw the back Dr today that MMI him or in other words said your as good as your getting and gave him permanet restrictions and recomending retraining. So he had to face the Dr telling him his career is over and thats not even including his shoulder and the RSD! Needless to say he is angry at the world today.
I will report back tomorrow what the Dr says about his shoulder/RSD.
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Old 11-15-2011, 11:26 AM #6
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I am so so sorry about the MMI. It is so hard when we can't go back to the careers we always had and loved. I am working really hard to get myself in shape to go back to my job but I know that even if I do I will never be like I was (always hands on and willing to do the physical stuff to get the job done). So I totally understand his anger. Hopefully he will be able to find something new to do that he will really love. I hope everything goes well today and you guys can get some of the answers that you are looking for.
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Old 11-25-2011, 01:09 PM #7
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So Dr stopped the blocks. When hubby turned hand over to show Dr where his palm was numb, the Dr jumped up and flipped his hand back over nd was concerned about how bad his hand had atrophied, this is evident in his entire arm. his elbow is now the largest part of his arm! The other night we noticed his arms were two different colors. He is now to have an EMG of which he isnt amused.
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Old 11-25-2011, 01:31 PM #8
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That's not good at all...I'm sorry.
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Old 11-25-2011, 01:39 PM #9
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Quote:
Originally Posted by trkdvr View Post
So Dr stopped the blocks. When hubby turned hand over to show Dr where his palm was numb, the Dr jumped up and flipped his hand back over nd was concerned about how bad his hand had atrophied, this is evident in his entire arm. his elbow is now the largest part of his arm! The other night we noticed his arms were two different colors. He is now to have an EMG of which he isnt amused.
And it shouldn't stop there with only an EMG. With that much atrophy, neurologically more needs to be explored to find out if the atrophy is a nerve compression (more likely) issue or "muscle" (less likely) issue. Assuming the prior, then they need to determine if it is a nerve root problem or peripheral nerve problem. Adding a NCV and SSEP's will better clarify the origin. So the options will come down to a neck problem (root compression), a peripheral nerve injury (surgery related - direct injury to plexus or non-resolved traction injury or non-surgically related), atrophy secondary to CRPS or a combination of the above. I wouldn't think that SGB's would cause so much nerve damage unless the PM doc was totally inept and way off the mark (possible I suppose).
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Old 11-25-2011, 02:04 PM #10
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Dr was saying something about the nerves you do tell what to do (pick this up,move over here,etc) as opposed to the ones you don't. Not sure where he is going with this. Keep in mind hubby had a failed RTC surgery so he has that going on too.
I will post the results,but as this is WC, everything takes forever! The EMG is to be done Dec 19 and see Dr 12/22.
This is all just too much! I have MY surgery 12/16! I will be starting Vit C here soon, to well, be on the safe side- it won't hurt- but could be a life saver for me! Right?
He is at least getting some muscle relaxers and pain killers-albeit-low dose but it helps- some. He isn't eatting bottles of advil anymore.
During one of the blocks, he said it was different, felt like a wire going out towards his shoulder. Like Dr pushed right thru.
He has this feeling like his shoulder is being pulled apart. And I am powerless to help.
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