Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-12-2011, 10:07 PM #1
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Help RSD arm is acting odd

My hubby has been having Stellate Ganglion Blocks for his left arm/shoulder.
He had his 5th yesterday.
This evening his arm is MORE swollen,moving on its own(like the muscles under the skin) and feels like its on the verge of falling asleep!
anyone experience this? i dont know what to do! If I take him to ER they wont know anything..GRRRR
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Old 11-13-2011, 01:58 AM #2
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Quote:
Originally Posted by trkdvr View Post
My hubby has been having Stellate Ganglion Blocks for his left arm/shoulder.
He had his 5th yesterday.
This evening his arm is MORE swollen,moving on its own(like the muscles under the skin) and feels like its on the verge of falling asleep!
anyone experience this? i dont know what to do! If I take him to ER they wont know anything..GRRRR
If it's urgent, call the doc who performed the block. If an ER visit is needed, a teaching hospital would be preferred.
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Old 11-13-2011, 09:19 AM #3
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If it's urgent, call the doc who performed the block. If an ER visit is needed, a teaching hospital would be preferred.
I agree. Swelling and tremors are typical with RSD...but if it's something worse than normal then you should see a doctor as soon as possible. Very sorry to hear that happened.
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Old 11-13-2011, 11:52 AM #4
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Quote:
Originally Posted by trkdvr View Post
This evening his arm is MORE swollen,moving on its own(like the muscles under the skin) and feels like its on the verge of falling asleep!
anyone experience this? i dont know what to do! If I take him to ER they wont know anything..GRRRR
I get those muscles spasms too. I've explained them to my neurologist and the answer I got was the nerves were trying to fire up on their own. A typical symptom of RSD. If mine get worse she is going to prescribe muscle relaxers and maybe that's the course of action that your hubby needs. The ER won't do much but his neurologist might.
My left leg and foot are constantly feeling like they're falling asleep. Sometimes just tingling then other times feeling like they're in a press being squeezed. When both my arm and leg are in the press together I've cried from the pain being unbearable.
I have to stay indoors so the weather or wind won't bring on a flare up.
This monster sucks the big wazoo...
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Old 11-13-2011, 12:12 PM #5
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Thank You All
He refused to go to hospital and well they probably wouldn't be able to help him.
I am letting his Dr know of this. I believe also the Dr treating his back should know about the RSD DX. It was his Shoulder Surgeon who DX him, and sending him for treatments. I did call and get him some muscle relaxers a couple weeks ago, but this was different than whats been happening.
I am going to need a whole big bottle of anti-anxiety pills!
I hope all are having a good day!
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Old 11-13-2011, 03:54 PM #6
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I have had severe swelling right from the start of my RSD. It was so bad at one point my doctor thought I had a blood clot.

As to the block, I have had 2 and they both made me worse. One made me loose my coordination (couldn't walk - spent 13 months in a wheelchair) and the other made me develop severe myoclonic muscle spasms. I was later told that blocks can make RSD worse and aren't recommended, especially if in an RSD limb so that may be something to look into.

So sorry to hear about everything your husband is going through, I hope things get better soon. Tell him to keep moving no matter how much it hurts (and trust me I KNOW it does!) as hopefully that will help with the swelling.

Take care and let us know how he gets on!
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Old 11-13-2011, 04:08 PM #7
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Thanks Ali,
He has very limited movement in that arm as the rotator cuff surgery that started this also failed. The top of his arm is actually a little higher than his shoulder because of the original injury was so bad(his tendon was completly detached from the bone) When they reattached the muscle back to the bone and sewed up the muscle it left the muscle to short. Also the muscle is torn again. So he has more going on in that shoulder, but still uses arm just cant move it very far from his body(think chicken dance) but can bend elbow (think eatting or drinkking) He would like some physical therapy and take his meds and call it a day. The blocks helped with him being able to wear clothing on his shoulder and arm but seems to have opened a whole nother ball of wax.
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Old 11-13-2011, 10:21 PM #8
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Thanks Ali,
He has very limited movement in that arm as the rotator cuff surgery that started this also failed. The top of his arm is actually a little higher than his shoulder because of the original injury was so bad(his tendon was completly detached from the bone) When they reattached the muscle back to the bone and sewed up the muscle it left the muscle to short. Also the muscle is torn again. So he has more going on in that shoulder, but still uses arm just cant move it very far from his body(think chicken dance) but can bend elbow (think eatting or drinkking) He would like some physical therapy and take his meds and call it a day. The blocks helped with him being able to wear clothing on his shoulder and arm but seems to have opened a whole nother ball of wax.
Yup, a shoulder "expert" messed me up too. I've had 17 SGB's (#18 this Tuesday)....almost all helped without the kind of side effect that you are describing, although I have had others. And I didn't get the benefit of a successful arthroscopy either. I agree....you need to talk to the PM doc who did the block.
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Old 11-13-2011, 11:32 PM #9
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Blocks need to be treated with respect. The experience of the doc with RSD, the time he spends, the meds he uses--all make a difference. This is your spine we're talking about! But, it is an important tool as well.

For the OP, was this a stellate ganglion block? I had a radiofrequency neurotomy that was a described as a longer lasting, more intense block, and I had horrible side effects...

How bad is the swelling? The severity is key.

If he's suddenly able to move it after long disuse that could account for some swelling and that in turn could cause numbness. The twitching could be a result of the nerves finally getting messages after so long a period of dysfunction.

Get him in to the doc that performed the block asap. Get a second opinion if he doesn't relieve your concerns.

5 blocks, especially in a short amount of time, can cause scarring on the nerves. This maybe should be his last... But, they might be finally starting to have a positive cumulative effect...
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Old 11-14-2011, 12:48 AM #10
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Dr doing blocks is not his treating dr and i dont think he has much knowledge of RSD.
His surgery was over 6-7 months ago so it isnt like has gained any ROM he has been out of a sling full time for quite awhile.
he sees the back dr tomorrow and i will get with the shoulder dr inthe am
the swelling was more than normal and also in a new area. now with the arm on verge of falling asleep has me concerned that maybe they are doing more harm than good
he is supposed to have the last 2 blocks tuesday and friday. i think a follow up visit is called for even tho he isnt done.
since this is workers comp we dont get the luxery of going to other dr's until we are referred. Otherwise I would just schedule him with a expert in RSD or at least as close as i could find. Grrr
His treating Dr has treated RSD patients though i found out but he is a Orthopedic Surgeon. Think with what is going on he will send hubby to another Dr for the RSD he was trying to stop it so he could do surgery to fix the shoulder and I just dont see that happening.
thank you all for your responses they are most appresciated
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