Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
NeuroTalk Support Groups > > >

t.D.C.S. Update Could remission be within my reach and your's too?

Reply
Page 22 of 51 « First 122021 22 232432 Last »
 
Thread Tools Display Modes
Old 03-30-2012, 03:02 PM #211
nick allen's Avatar
nick allen nick allen is offline
Junior Member
  
Join Date: Mar 2012
Posts: 13
10 yr Member
nick allen nick allen is offline
Junior Member
nick allen's Avatar
 
Join Date: Mar 2012
Posts: 13
10 yr Member
Default keeping faith
Hi Ballerina,

I wouldn't dream of going for any device other than that recommended by you, believe me I wouldn't want to cut corners like that. I am in a tight spot but will eventually follow your lead. In meantime, the exceptionally decent guy I refer to who knows of my plight has kindly loaned me a unit for trial. It's just cleared UK customs. I'm so very sensitive at moment I just want to let you know more details after I start using it. I have got a ton of respect/faith in what you have achieved, just give me time to see how it goes. Thanks for being so kind and supportive, people like me really value it. Never been in such desperate straits in all my life.

Nick
__________________
Be calm, you are not alone.
nick allen is offline   Reply With QuoteReply With Quote

advertisement
Old 03-31-2012, 04:40 PM #212
transcranial transcranial is offline
Junior Member
  
Join Date: Feb 2012
Posts: 7
10 yr Member
transcranial transcranial is offline
Junior Member
 
Join Date: Feb 2012
Posts: 7
10 yr Member
Default
It is so nice to see that you are getting better and taking hold of your life, no matter what.

tDCS activates more neurons, so this is why it feels like you have more energy. Your chemical levels of energy are still the same, yet your brain is working at (what people would consider normal speed) overdrive. The good thing is that it is only part of your brain working on overdrive.

Keep up the good work and the cm's,
Steve

Quote:
Originally Posted by CRPSjames View Post
I just had to post about my headaches. I have been suffering with severe headaches for years. Two weeks ago I thought they were getting better but reminded myself that it was probably just wishful thinking.

Now I know better because the headaches are gone. In the past anything has set off a headaches, light, noise, perfumes. I have not had a headache in ten days. It has been years since I was headache free.

Also my energy level is improving by leaps and bounds. I didn't realize how CRPS had robbed me of energy until I started improving.

I am beginning to wonder if tDCS is reversing the course of the disease since one of the many hallmarks of CRPS progression is decreasing energy levels.

I am zipping around now on my walker. I am getting stronger every day. I know it is only a matter of time before I walk out the door with a cane. My physical therapist has designed an aggressive exercise program for me to follow at home. Yesterday she measured my calf and I have gained one half inch!!!!!

Has anybody come up with an effective tDCS booster schedule?
transcranial is offline   Reply With QuoteReply With Quote
Old 03-31-2012, 05:24 PM #213
transcranial transcranial is offline
Junior Member
  
Join Date: Feb 2012
Posts: 7
10 yr Member
transcranial transcranial is offline
Junior Member
 
Join Date: Feb 2012
Posts: 7
10 yr Member
Default
Or inches (cm's=inches...)
transcranial is offline   Reply With QuoteReply With Quote
Old 03-31-2012, 05:36 PM #214
debbiehub debbiehub is offline
Member
  
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default Hi
Do u think this would work on Lower limb rsd?
debbiehub is offline   Reply With QuoteReply With Quote
Old 03-31-2012, 06:08 PM #215
CRPSjames CRPSjames is offline
Junior Member
  
Join Date: Feb 2012
Posts: 94
10 yr Member
CRPSjames CRPSjames is offline
Junior Member
 
Join Date: Feb 2012
Posts: 94
10 yr Member
Default
Quote:
Originally Posted by debbiehub View Post
Do u think this would work on Lower limb rsd?
It worked on mine. I was in a wheelchair and now I am transitioning from a walker to a cane. Don't give up on your first electrode placement.
CRPSjames is offline   Reply With QuoteReply With Quote
Old 03-31-2012, 09:33 PM #216
debbiehub debbiehub is offline
Member
  
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Red face Ty
How do you know we're to put the electrodes?
debbiehub is offline   Reply With QuoteReply With Quote
Old 04-01-2012, 12:08 PM #217
CRPSjames CRPSjames is offline
Junior Member
  
Join Date: Feb 2012
Posts: 94
10 yr Member
CRPSjames CRPSjames is offline
Junior Member
 
Join Date: Feb 2012
Posts: 94
10 yr Member
Default
Quote:
Originally Posted by debbiehub View Post
How do you know we're to put the electrodes?
Lots of research-do a pub med search on CROS and tDCS. You will find some real well done research. The electrode placements are clearly listed in the methods section. It is pretty much trial and error. If your are not into research I suggest consulting with the brain stimulation clinic in Atlanta.
CRPSjames is offline   Reply With QuoteReply With Quote
Old 04-01-2012, 01:05 PM #218
debbiehub debbiehub is offline
Member
  
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default research
Could you send me the link to that page. I am having trouble finding it.

Thanks!

Debbie
debbiehub is offline   Reply With QuoteReply With Quote
Old 04-01-2012, 03:52 PM #219
ballerina ballerina is offline
Member
  
Join Date: Feb 2011
Posts: 393
10 yr Member
ballerina ballerina is offline
Member
 
Join Date: Feb 2011
Posts: 393
10 yr Member
Default
Quote:
Originally Posted by debbiehub View Post
Could you send me the link to that page. I am having trouble finding it.

Thanks!

Debbie

Hi Debbie,

Just google Pub Med. Then type in CRPS and tDCS, or CRPS and Chronic pai or tDCS and safety. Some articles are printed in full. Others there is just an abstract. If you see one that looks particularly promising and it is only listed in abstract form you may write to the author to request a copy for your personal use. (If you obtain a copy this way you may not post the article).

You may also be able to obtain some articles from your local college, or if you have a connection to a large university or medical school your contact might obtain a copy for you.

One article will lead you to the next.

This is not a hard process, just demands a little persistence.

Hope this helps.
ballerina is offline   Reply With QuoteReply With Quote
Old 04-02-2012, 01:08 AM #220
daylilyfan daylilyfan is offline
Member
  
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
daylilyfan daylilyfan is offline
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
Default
I am wondering if the tDCS helps with thinking, concentrating part of RSD. I have trouble learning new things now, and I used to be able to learn quite easily. I have quite a problem in this area. I also have Fibro, and not sure how much is Fibro fog and what is RSD fog. Either way, I miss my brain. I could cope with RSD better if I could watch a movie without getting lost, or read a book for example.

This was the main problem for me when I was still working.

I hope to have the funds to try this treatment in a few months.
Last edited by daylilyfan; 04-02-2012 at 01:09 AM. Reason: Clarity
daylilyfan is offline   Reply With QuoteReply With Quote
Reply
Page 22 of 51 « First 122021 22 232432 Last »

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
In remission right now PMCPMC Myasthenia Gravis 3 09-13-2011 05:42 PM
RA in remission. Why is SFN not better? catloucle Peripheral Neuropathy 26 03-06-2011 11:22 PM
Remission !!!! Goodn'Plenty Reflex Sympathetic Dystrophy (RSD and CRPS) 23 04-16-2010 01:51 PM
RSD in Remission Maureen Hartnett Reflex Sympathetic Dystrophy (RSD and CRPS) 7 01-07-2008 08:41 PM
ang....and remission jennyk38 Reflex Sympathetic Dystrophy (RSD and CRPS) 2 08-24-2007 07:01 PM


All times are GMT -5. The time now is 12:37 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home