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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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03-15-2012, 08:48 PM | #1 | |||
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03-16-2012, 07:06 AM | #2 | ||
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Yesterday I went out the door with my cane for the first time. The first thing I did was to walk through the daffodils blooming by the driveway. Then I walked to the mailbox and back.
A mundane activity that most people take for granted. I have not had that much fun in years. After having been maimed by a Boston Scientific Spinal Cord Stimulator tDCS has given me a new life. The wheelchair that the Spinal Cord Stimulator relegated me to is now in the shed. I hope the walker will also reside there soon. It is not often that CRPS worsened by Spinal Cord stimulators responds to anything. I am in awe and feel so thankful for finding this treatment. I am now in physical therapy only once a week, down from three times a week. The atrophy in my leg is just about gone. I am sleeping like a baby. I am now on maintenance treatments of twice a week for twenty minutes each. The best thing is that my energy level is back to the pre-CRPS, Pre spinal cord stimulator level. There is no doubt in my mind that tDCS has interrupted the progression of the disease. If you are newly diagnosed please consider tDCS to knock out the CRPS. For all of those with CRPS who are considering Spinal Cord Stimulators please read my history first. I have been to hell and back. The only thing worse than CRPS is CRPS made worse by a failed Spinal Cord Stimulator.(And most of them do fail for CRPS patients, within several months to several years) I try not to look back but some times I can't help but think about how my life would have been different if I had used tDCS early on, prior to the many treatment failures and medications that either did not work or made me worse. Please consider tDCS. You have nothing to loose. |
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03-16-2012, 07:43 AM | #3 | |||
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Congrats!! That is fantastic. I definitely know what you mean about how fun and exciting those "mundane" activities can be. After spending months and months in a wheelchair I remember being terribly excited when I was able to reach into one of the upper cabinets in the kitchen and get myself a plate that was not left on the counter for me. Such a little thing...but so huge to me at the time. Same goes for he first time I was able to get in the car and drive after almost a year of not being able to.
I am SO happy to hear how well you are doing. Keep it up and keep us posted. |
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03-01-2013, 06:34 PM | #4 | ||
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06-15-2013, 11:15 PM | #5 | ||
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I discovered this thread while looking for help with my chronic depression - I do not have RSD or CRPS.
However I am very interested in TDCS as a treatment for my depression. I subscribed to the mailing list of a company called GoFlow who were working on a direct-to-consumer TDCS device, but in the last week or so received an email from them saying they were winding up - and referring interested parties to another company,*edit* It's marketed as a video game performance enhancing device, but I am hoping that by using the optional extension kit, I can use it to direct current to the relevant parts of my brain. It has received some criticism, but I'm still optimistic. Has anyone here come across it? I'd be interested to hear others' opinions, but in any case, if TDCS does help RSD then maybe this might be of interest to others to investigate ... looks like it won't even START shipping until next month, so don't know when I'll get my unit. I intend to do some regular cognitive tests to make sure that at the least I am not harming any cognitive abilities I can readily test, although as I mentioned, I'm primarily interested in this device for its possible mood enhancing properties. Last edited by Jomar; 06-16-2013 at 01:08 AM. Reason: No linking or partial links for new members |
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06-19-2013, 12:52 AM | #6 | ||
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I have read that tdsc has been used to help drone pilots learn quicker so I would assume that it would help video gamers. Don't know about depression though.
On the depression topic though, my psych believes that Ketamine will be the next "big" treatment for depression. |
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04-17-2014, 09:54 PM | #7 | ||
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I haven't seen any postings lately about tcds so I don't know if this discussion is okay but I found this article on Yahoo today and it is very similar to tcds. Thought some of you who've tried it might be interested. http://news.yahoo.com/blogs/this-cou...8561.html?vp=1
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01-05-2012, 01:26 AM | #8 | ||
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I found the Activa Dose II and the wires at 3b scientific, but the sponge electrodes I cannot find. amrexusa does not list the product or using the item code #2-A103. So can you tell me where the last place you ordered it from, ect it would be appreciated. getting the md order will be the easy thing. After already paying thousands of dollars for meds, IV's , hyperbaric chamber, ect....we are willing to try anything. The no disposable ones are the ones I think you are using. Thanks, M
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01-05-2012, 05:15 PM | #9 | ||
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Last edited by ballerina; 01-05-2012 at 07:27 PM. |
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01-05-2012, 05:52 PM | #10 | ||
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I had not seen my neurologist in three months. He was amazed that my posture is almost normal, my balance has greatly improved, the CRPS sores that had been occurring with regularity have vanished, the allodynia has been substantially reduced, my sensitivity to noises and vibrations has improved, I have not had pain reaching above the level of 6 out of 10 when level 9 was not uncommon, my episodes of profuse sweating and racing heart rate have improved as well as GI issues, I can hold a pen, button my sweater, (which I can now wear for a few hours at a time) wear a ring on my hand, and most amazing, the claw hand is gone!!!!!!
My neurologist stated that he wished he could take credit for my improvement and stated that he had never seen this kind of improvement in a CRPS patient. He suggested that he would not have seen this kind of improvement with Ketamine infusions. He asked me about my equipment and treatment protocols because he would like to purchase a unit to treat migraines. Just didn't have it in me to use my appointment to educate him on tDCS since I had other issues to discuss. I am so done with using my appointment times and co-pays to educate treatment members on the various treatment and meds that have helped me. I referred him to one of the tDCS treatment centers that offers training to physicians. There truly is not much out there that can fix dystonia. tDCS addresses the root cause of neuropathic pain. It has interrupted the progression of the disease for me and greatly improved the quality of my life. This past summer I was feeling pretty desperate, not knowing how much more I could take. Given my remarkable response to tDCS, I believe that remission may be possible for me over time. I truly hope others who feel similarly desperate will consider this treatment, particularly if the sense of desperation is causing consideration of risky and invasive procedures such as Spinal Cord Stimulators. I hope this information offers hope to all! Last edited by ballerina; 01-05-2012 at 10:27 PM. |
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"Thanks for this!" says: | catra121 (01-05-2012), daylilyfan (01-05-2012), fmichael (01-17-2012), Joydee (01-11-2012), SandyRI (01-05-2012) |
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