So happy to see we haven't lost touch. It just seemed like no one was using tDCS so we had no info to respond to. I'm happy to see people are still using and hoping for some sort of improvement. I live alone and take care of my grandson only 2 days a week so if there were any noticeable changes I was not aware of there is no one to tell me there is a change. I still to this day do not notice any improvement. Last response with Dr Fugedy was 2 wks ago and he's waiting for something from WHEREVER? lol to this because I've heard 2 diff locations and both involve Europe. So take it with a grain of salt. Which is what I did. If I ever hear from him again I'll be surprised. Take a lesson.
When I use the unit I have 2 rubber head bands one for each pad specially when trying to do this by yourself with only 2 hands it is difficult. One band holds over the ear and one holds over the eye then I use a 3" ace bandage that I cut with velcro at one end. It works perfect to hold it all together once the pads are in place. So right now I'm not doing anything since no other protocol is available at this point. So you just hang in limbo. So to anyone else using tDCS please be happy with any help it may be to you. To those of us it has not helped we'll just keep praying for some other treatment to come along that we can put our hopes into. Hang in there everyone and always know we are all pulling for some each other. Much Luv to All.

I'm sorry to hear that you are not having success Hampster and that you are frustrated with Dr. Fugedy. How many protocols have you tried so far? I think of you and Deb often and I wish that you both had gotten some relief with tdcs. While most of my relief has not been with the pain portion (though the reduction in sensitivity in my hands and arms is something I am SO grateful for), I can confidently say that the other things which tdcs has helped with have contributed greatly to better quality of life and make it so much eaiser for me to get through the day to day stuff. I will keep praying that you and deb both find something that can help you.

Well...tomorrow is the big day...I will be on my way to Disney World in 24 hours. At this time tomorrow I will be on an airplane headed to Orlando. I am still very anxious about dealing with the airport and the plane ride...but arriving at the airport 2 hours before my flight should give me all the time I need to get through it all without too much stress. Excited and anxious...it's quite the combination. I asked for today off work and the request was granted so I have all day to double check to make sure I have all my meds, my "flare kit", tens unit, cane, proper clothing, etc. I put in 72 hours of work from Saturday to Thursday...and I am so tired and hurting...I think I will need the entire day to get moving. Good news though...weather is planned to be highs in the mid 80s, lows in the upper 60s, and no rain for our entire trip. That should be a wonderful change from the temps in the 30s-50s here in chicago.

Wish me luck! I'll report back on how everything goes when I get back.

[QUOTE=ballerina;826040]My journey is very similar to other folks with CRPS. My options, however, may be more limited than many due to drug sensitivities. Ketamine is out of the question because I am allergic to it. I have grown weary of the tired advice that my pain needs to be better managed by drugs. I made the decision early on to heed the warning of research regarding Narcotics only increasing neuropathic pain long term.


hey how are you doing? hopefully your feeling better, i was wondering what device you are using i had a concussion and still have headaches I've been use the david delight pro from canada is that the same thing? thanks

This looks very interesting - I'm definitely bookmarking this. My daughter also tried Graded Motor Imagery and Mirror Therapy, but only got very minimal results with a LOT of time, so she stopped. The GMI started to be counter-productive after a few months, though, because it was so boring and frustrating for her, so she stopped. We had an interesting thing happen with Mirror Therapy, though - it increased mobility in the foot where the RSD started.

Thank you for sharing this with us! I might try it, because I have fibromyalgia.

Nice other options to try. Mirror therapy I tried and still doing both ,one for my rsd affected limb and the other to make and reset my mind to look ok and happy.
Works this way ,I take pictures of myself daily and also,fix my hair ,make up and try to be the way as I was before ,that mirror that I see, I only see a happy person ,many times my smiles are fake on my pictures but when I saw then I can't remember which ones where real on fake ,I focus on the happy person and that's keep me going throughout the day . but sure anything new and relief method are welcome ,thanks for the inputs and help ,loving. Hugs ,Jesika .

There are so many "little" things that we can do that help. I like your smiling idea. I've heard that even fake laughing can make some positive chemical changes in your body, but I've been too embarrassed to try it!

What I like to do is always have flowers that I can see. Trader Joe's has really good prices on flowers. Beauty is really important to me! I also love music and hope that I can start playing my harp again soon. In the meantime, I've found some really lovely piano music that I play before going to bed.

Thanks for sharing