Hi Voner,

Question #1 I did the C3 protocol when I was treated at Beth Israel and had a positive response. The researchers were pretty exacting about precise location. That kind of precision was necessary because they were primarily a research institution. The electrodes are big enough that they cover many areas so getting it close is good enough. You can use diagrams for the 10-20 system, use the percentages to find the location. (You can find the 10-20 by doing a google search, try EEG Measurement and Setup, or EEG 10-20 International System) After you find it pm me if you have any questions.

I have tried three other protocols, (electrode placements) two had no effect and one worked better.

Question# 2 3" pads are the standard electrode at the three treatment centers in the U.S.

Question # 3 I had to kiss a lot of toads before I found my Prince PM and Neuro docs. In addition to consulting with top Drs. in tDCS, I find it very beneficial to have a partnership with both a PM and a Neuro. It also helps that they are on the same page, particularly regarding invasive procedures and CRPS.

Don't give up on Docs. Finding a good fit can be very hard. The hardest part with having CRPS is learning what defines a good fit.

Hope this helps!

Ballerina, I'm new here. I bought an electrophoresis unit several years and gave my wife some treatments (CRPS with pudendal/sciatic neuropathy), but didn't get anyhwere. I never felt like we pushed it enough; we gave up after 7 treatments in 9 days (interrupted over a weekend). I positioned the leads in the recommended fashion: cathode of right motor cortex (contralateral to her worst pain on left side), anode over left forehead (I'm rushed at the moment; hope I'm not stating anode/cathode backwards).

We decided to try again this week, as she has experienced a bad flare-up. I saw your posts last night, and you've inspired me to double our efforts, which we were actually contemplating (2x/day, two weeks). My question: which electrode placement do you think is working best for you? I certainly agree with your point that precise placement is not essential given the broad distribution of the charge.

I just wanted everyone to know Ballernia lost her password and is trying to get it back. She will respond soon.

Am I allowed to post my email address so that Ballerina can contact me offline?

It's never a good idea to post your private email address on any board because that opens you up to world-wide spamming. Instead, may I suggest that you persevere a little longer. Once you've been with us a little longer, and made a few more posts, you will be able to communicate with any other member here via PM (personal message).



Ballerina, if you're reading offline please know that if you contact Admin, they can reset your password..

Thanks Koala77, Chemar and bent helped me out!

Hi iguanabill,

I assume the device you are using is an iontophoresis unit? I have not come across any references in the literature of tDCS causing a CRPS flare. If not done correctly it can cause a burning sensation, which could certainly ignite a flare. Please send me a pm in more detail.

Ballerina,

Yes, the device is a Phoresor II Auto unit. Sorry for the confusion, the flare up had nothing to do with tDCS; we're trying the tDCS again because of the flare. I have not figured out yet how to send a PM with this discussion board (I'm not finding a link), so I can't contact you that way.

At this point, we've only tried cathode stimulation of the right motor cortex, trying to address the area of worst pain in her left coccyx/perineal region. We've now done 17 treatments over the last 9 days with no obvious benefit thus far. Just wondering whether you have another arrangement for electrodes that you have found to work...and how YOU are doing with the self-treatment. I hope you're still making progress.

If you click onto any member's name, you will see several options. The second one down says: Send a private message to *** Click that one to open up the private message option.

Another way is to go to your own home page. Click User CP (first on the left). Under private messages you will see an option to send new messages.

I hope that helps.

I had already clicked on these items while trying to find a way to send a PM, but the options simply do not appear. I assume it's because I'm still too new and am not permitted to PM. Maybe this will change after a few more posts.

I did appreciate the advice, though. Thank you!