Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-01-2012, 10:05 AM #1
voner voner is offline
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Default TDCS trial report

This is a report for anyone interested in tdcs trials.

Upon reading of ballerinas success with tdcs, and then doing considerable research on the subject (I live in a town where I can go to a university to get access to this the published scientific literature) -- I obtained a similar tdcs system as ballerina uses and have done a couple 10 day trial periods. I did one 20 minute session a day, at 2 milliamps.

I have experienced no discernible change whatsoever in any of my symptoms. In the 1st ten-day period, I placed the anode over and a little below the EEG C3 location, and the cathode on my forehead above my left eye. I experienced some significant sleep disturbances, which caused me to stop and reevaluate.

In the 2nd 10 day period, I placed the anode over the EEG C3 location and a little above and behind towards the rear of my head, and the cathode on my forehead above my left eye. I did not experience any sleep disturbances in this trial, but nor did I experience positive changes in my symptoms.

I have a very angular head -- and using the square rather inflexible electrodes is rather frustrating for me -- because the C3 location is right at where my head does about an 80° bend!! I may purchase a those round flexible electrodes & sponges.

Almost every session I do experience some flashing in my eyes -- which settles down within a few minutes, and my forehead sometimes is a bit irritated/burning under the electrode.

Just fyi for you all! I will continue to make adjustments to see if I can make any progress in reducing pain/alleviating some of my symptoms.

PS> I found FMMichael’s references to Dr. Llinas’s groups research and theories to be quite fascinating -- thanks a lot! And thanks to ballerina!
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Old 03-01-2012, 09:02 PM #2
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Quote:
Originally Posted by voner View Post
This is a report for anyone interested in tdcs trials.

Upon reading of ballerinas success with tdcs, and then doing considerable research on the subject (I live in a town where I can go to a university to get access to this the published scientific literature) -- I obtained a similar tdcs system as ballerina uses and have done a couple 10 day trial periods. I did one 20 minute session a day, at 2 milliamps.

I have experienced no discernible change whatsoever in any of my symptoms. In the 1st ten-day period, I placed the anode over and a little below the EEG C3 location, and the cathode on my forehead above my left eye. I experienced some significant sleep disturbances, which caused me to stop and reevaluate.

In the 2nd 10 day period, I placed the anode over the EEG C3 location and a little above and behind towards the rear of my head, and the cathode on my forehead above my left eye. I did not experience any sleep disturbances in this trial, but nor did I experience positive changes in my symptoms.

I have a very angular head -- and using the square rather inflexible electrodes is rather frustrating for me -- because the C3 location is right at where my head does about an 80° bend!! I may purchase a those round flexible electrodes & sponges.

Almost every session I do experience some flashing in my eyes -- which settles down within a few minutes, and my forehead sometimes is a bit irritated/burning under the electrode.

Just fyi for you all! I will continue to make adjustments to see if I can make any progress in reducing pain/alleviating some of my symptoms.

PS> I found FMMichael’s references to Dr. Llinas’s groups research and theories to be quite fascinating -- thanks a lot! And thanks to ballerina!
Hi Voner,
Glad you are trying tDCS. I am a little confused. It sounds like both electrodes are on the same side of your head. Is that correct?
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Old 03-01-2012, 11:29 PM #3
voner voner is offline
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Originally Posted by CRPSjames View Post
Hi Voner,
Glad you are trying tDCS. I am a little confused. It sounds like both electrodes are on the same side of your head. Is that correct?
crpsjames,

sorry i wasn't clear. I'm following standard tDCS for pain protocol. anode on one side, cathode on the other. So far, In my case, anode on the left side.

regards.

voner
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Old 03-02-2012, 11:07 AM #4
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So...just to be clear, you then have the anode on your left side and the cathode above your RIGHT eye? I know I personally had to really think about it the first few times...I was overthinking it I think.

I started doing treatments twice a day starting Sunday and so far so good I think. I believe I have noticed some pain reduction...though to be honest I don't notice the pain level dropping so much as I notice that after a few hours it goes back up again. I think it's just because I have gotten so used to the high pain levels all the time that it's throwing me off. I'm going to continue with this current electrode placement for another week and see if there is any significant difference over time and if not I will try a different protocol.
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Old 03-03-2012, 08:10 AM #5
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Default Headaches Gone

I just had to post about my headaches. I have been suffering with severe headaches for years. Two weeks ago I thought they were getting better but reminded myself that it was probably just wishful thinking.

Now I know better because the headaches are gone. In the past anything has set off a headaches, light, noise, perfumes. I have not had a headache in ten days. It has been years since I was headache free.

Also my energy level is improving by leaps and bounds. I didn't realize how CRPS had robbed me of energy until I started improving.

I am beginning to wonder if tDCS is reversing the course of the disease since one of the many hallmarks of CRPS progression is decreasing energy levels.

I am zipping around now on my walker. I am getting stronger every day. I know it is only a matter of time before I walk out the door with a cane. My physical therapist has designed an aggressive exercise program for me to follow at home. Yesterday she measured my calf and I have gained one half inch!!!!!

Has anybody come up with an effective tDCS booster schedule?
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Old 03-03-2012, 10:04 AM #6
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Originally Posted by CRPSjames View Post
I just had to post about my headaches. I have been suffering with severe headaches for years. Two weeks ago I thought they were getting better but reminded myself that it was probably just wishful thinking.

Now I know better because the headaches are gone. In the past anything has set off a headaches, light, noise, perfumes. I have not had a headache in ten days. It has been years since I was headache free.

Also my energy level is improving by leaps and bounds. I didn't realize how CRPS had robbed me of energy until I started improving.

I am beginning to wonder if tDCS is reversing the course of the disease since one of the many hallmarks of CRPS progression is decreasing energy levels.

I am zipping around now on my walker. I am getting stronger every day. I know it is only a matter of time before I walk out the door with a cane. My physical therapist has designed an aggressive exercise program for me to follow at home. Yesterday she measured my calf and I have gained one half inch!!!!!

Has anybody come up with an effective tDCS booster schedule?
It is very encouraging to hear that your headaches are gone. For the past year of so (since the RSD got worse) I have been suffering from contast headaches...they are just the norm now it seems. Another thing I suppose I should be keeping an eye out for maybe.

Also great to hear how well you are doing with the walker. Ever since I reached the point where I could use the walker and started to get the strength/endurance back my energy levels have been so much higher. I think a big part of it is the mental boost I get from being able to do things that I couldn't do for months and starting to feel a little more normal. Not that being 28 and needing a walker is particularly normal...but I'm sure you get the idea and know what I am talking about. Keep at it and I am sure you will be able to leave the house with that cane in no time.
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Old 03-31-2012, 04:40 PM #7
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It is so nice to see that you are getting better and taking hold of your life, no matter what.

tDCS activates more neurons, so this is why it feels like you have more energy. Your chemical levels of energy are still the same, yet your brain is working at (what people would consider normal speed) overdrive. The good thing is that it is only part of your brain working on overdrive.

Keep up the good work and the cm's,
Steve

Quote:
Originally Posted by CRPSjames View Post
I just had to post about my headaches. I have been suffering with severe headaches for years. Two weeks ago I thought they were getting better but reminded myself that it was probably just wishful thinking.

Now I know better because the headaches are gone. In the past anything has set off a headaches, light, noise, perfumes. I have not had a headache in ten days. It has been years since I was headache free.

Also my energy level is improving by leaps and bounds. I didn't realize how CRPS had robbed me of energy until I started improving.

I am beginning to wonder if tDCS is reversing the course of the disease since one of the many hallmarks of CRPS progression is decreasing energy levels.

I am zipping around now on my walker. I am getting stronger every day. I know it is only a matter of time before I walk out the door with a cane. My physical therapist has designed an aggressive exercise program for me to follow at home. Yesterday she measured my calf and I have gained one half inch!!!!!

Has anybody come up with an effective tDCS booster schedule?
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Old 03-31-2012, 05:24 PM #8
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Or inches (cm's=inches...)
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