Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-05-2012, 07:50 AM #11
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Quote:
Originally Posted by CRPSjames View Post
The dystonia in my foot is now totally resolved. I knew it but did not want to post until I saw my doctor today. I truly believed that I would spend the rest of my life in the wheelchair due to a failed Spinal Cord stimulator. I am now using a cane at all times. I move rather slowly and cautiously but the wheelchair and walker are gathering dust. The alodynia in my foot is improving every week. (Not so much for the alodynia at the surgical sites caused by the Spinal Cord Stimulators due to multiple revision surgeries, but I am hopeful that continued tDCS will help)

Are you out there Catra?? I just know that you are going to follow me right out of that walker!

So now the score card is: headaches 0, dystonia 0, alodynia in wrist spread caused by the SCS 0, skin infections, also the result of the spread caused by the SCS 0, sleep disturbances 0. I am off all narcotics and I pray it is forever.

Today I went outside and sat on the ground in the warm sun and was laughing while I was pulling weeds. After the SCS failure my wrist was totally useless and even the air from the heat coming on caused severe pain. Now I am wearing gardening gloves, smiling at dandy lions and loving every minute of my life.

The atrophy in my leg is almost gone and now I am working on core training in PT. The physical therapist giggles when she sees me. My wife cried when she came home from work and found me weeding.

I don't know if tDCS can put me into remission but my money is on an eventual score of CRPS 0.

I can't wait to go to support group tomorrow to tell everyone, although I think this post might let the cat out of the bag.

Hope anyone thinking about trying tDCS will seriously consider it. It is cheap, non-invasive so it cannot cause a spread, portable and can be done at home.

Wishing everyone the kind of joy I am feeling today!
This is really very very wonderful! I am SO happy to hear it. I was outside weeding in the garden too.

I have to say that I am extremely happy with my progress so far with the tDCS. I've been doing it a little over a month now and the results so far are all positive. The pain and allydonia in my hands and arms is now so much less than it was before. It's still there and reacts particularly bad to the extremes in temperature and cold air...but SO much better. I haven't had any instances of my hands freezing up in several weeks. And outside of the flare that was caused by the minor car accident I was in (and that lasted less than a day...still blows my mind) I have not really had any flares in my hands or arms for the last few weeks.

I have also begun to notice a reduction in the pain and allydonia in my left ankle. This has taken a while...but I have started to notice that it IS less. I wasn't sure at first (was it just a few good days or was it really sticking) but now I feel comfortable saying that it is indeed a reduction in the overall pain level. I'm still using the TENS unit and doing all my other things...but where the pain level was never below a 6 before at its best...now I would say it generally stays between a 3-6 each day instead of a 6-10. Now...I did have a few instances of it flaring up to that level 10 level...usually if I misstep or bump my foot or anything like that. But even these flare ups are less often and last much shorter periods of time. All that said...I have started doing more walking without with a cane or a walker. Never far and never for long (always with the walker or cane in the room with me just in case...but I have been doing it more. The balance is still awfully shakey so I make sure than whenever I do this that there is something I can grab on to or lean against (like a counter or wall) because I don't want to fall and risk a bad injury. I need to be careful not to overdo it (I MAY have done this once or twice in the past couple weeks but I get over it quickly). I don't expect to leave the walker in the dust anytime soon...but I am now more optimistic that it WILL happen in time. I have really been able to build up a lot of strength back in my whole body.

Oh...and I have noticed that I am sleeping better these days. I went off of the amitriptyline that I was taking at bedtime to help me sleep and I am sleeping a little longer than I was when I was taking it. My sleep is a little more broken than it was when I was on the meds but now I might get 2-4 blocks of sleep throughout the night that last about 2 hours each (sometimes a little more and sometimes a little less). This adds up to more than the 3-4 hours I was getting with the meds so I am happy with it and hope that it just gets better and better.

I still have a ways to go but I am very happy with my progress in just over a month. Here's hoping it just gets better and better from this point on.
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