Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-15-2012, 02:43 PM #11
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catra121 catra121 is offline
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Join Date: Jan 2010
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Quote:
Originally Posted by Hampster63 View Post
How is it you are all doing this tDCS treatment but no one mentions how or where they got the protocols on placement of the leads. Where did you learn how to apply them? You all seem so educated in the treatment but I don't hear you talk about any doc who is following you or making the protocol suggestion. Did anyone go to any trials and learn the placement? You could spend your life on Pubmed searching but unless you have a goal you're lost in cyber space. Just throwing out this question since I'm very new to all this, but am a firm believer. Thanks.
For me...I did some research and read some PubMed articles as well as watching the Jove video and reading the PDF file that was with it which gives a list of several different protocols along with their benefits and limitations. But the current protocol I am using is one that was suggested by ballerina who has done EXTENSIVE research, went through a tDCS trial, and has tried a number of protocols on her own to see what was most effective.

My primary care physician wrote me the script for the equipment and is supportive of my treatment with it...but she herself does not have a lot of experience with this sort of treatment and is not really overseeing my treatment or making any recommendations about it. But as there are no side effects and it is not invasive...it is very safe to treat myself at home.

I know there have been posts about Dr. Fugedy and even a link to his clinic in Atlanta that have been posted. I find the website for the clinic to be very informative about the benefits of this treatment and if I felt the need to treat with a doctor at a clinic...that would be where I would want to go. But for the cost of equipment and a bit of my time to research I think home treatment was the best option for me. The first protocol I tried didn't go as well as I hoped...but I was prepared to spend some time doing trial and error to find what worked best for me. I feel very lucky that I responded well to the second protocol I tried. If I couldn't get one to work for me I was prepared to schedule a visit to see Dr. Fugedy.

I hope that answers your question? I think that one of the simply wonderful things about tDCS is that it is a non-invasive, safe treatment, that can be done at home. My only fear about doing it on my own was that I would not be able to find a protocol that I responded to.
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