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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | ||
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Yes I am in pain and yes the pain is glorious.
For the past four days my pain level has been down to a level two. (it goes up and down but the lowest is two) The last time I had a level two pain was prior to CRPS. I do have miserable muscle pain and I am loving it!!!!!!!!!!!!!!!!!!The pain is from muscles that I have not used in years. For the past several days I have been joyously doing mundane activities like dishes, laundry, dusting, picking up stray sticks in the yard, etc. Waking up those muscles has NOT set off a flare, just soreness from long term lack of use. This is what I have done recently. Gone back on LDN 4.5 mg. to combat inflammation, gone back to melatonin, upped it to 2 mg. for sleep issues, gone back on glucosomine for inflammation. I have also gone back on 5 mg of Adderall twice a day for pain and cognitive issues. I am also doing two forty minute sessions of tDCS twice a day. Additionally I am sticking ruthlessly to the home PT plan I devised which consists of twenty minutes on and twenty minutes off of some form of exercise all day long. I am also doing mirror therapy three times a day. Basically I am spending time on controlling the inflammatory response of my body to CRPS an whatever I can do to address brain reorganization. My husband and I have been non stop smiling and laughing. Today I went out into the yard and cut some roses for the kitchen table. (I am still a little uncoordinated and I dropped them on the way in) When my husband walked in the door I surprised him with roses from the garden and he surprised me with roses from the florist. I hit the jackpot!!!!!!!!!!!!! I could not be happier for CRPSJAMES, Deb, Irene and Catra and others who are making progress but can't share for fear of repercussions from doctors. I have been lucky that CRPS did not cause depression but I never expected to be overjoyed while having CRPS!!!! I hope my joy is infectious to all!!! Better days are ahead for all of us! |
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