Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-31-2012, 04:36 PM #1
debbiehub debbiehub is offline
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Well it's been over three weeks two times a day and nothing, Nothing works for me! So frustrating
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Old 05-31-2012, 05:38 PM #2
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Well it's been over three weeks two times a day and nothing, Nothing works for me! So frustrating


Oh Deb...I'm so sorry. Please try not to let yourself get too down. Have you spoken to Dr. Fugedy lately to get his thoughts? Maybe trying a different protocol at this point would be in order. It seems that everyone responds to different protocols so maybe this one just isn't "the one." You've got a great resource in Dr. Fugedy so make sure to use him as much as possible. For me, it was my second protocol that worked the best. I was disappointed with the initial results but after two weeks made the change. And I know ballerina has tried out several different ones with varying levels of success. Unfortunately this is not yet an exact science. We're here for you though so if you need anything please let us know.
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Old 05-31-2012, 05:43 PM #3
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Thanks for your response,,,fugedy said to give it 4-6 weeks so I am waiting,,,can I ask what protocol did help u? where did u put the electrodes?
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Old 05-31-2012, 06:03 PM #4
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Thanks for your response,,,fugedy said to give it 4-6 weeks so I am waiting,,,can I ask what protocol did help u? where did u put the electrodes?
I am currenty using the M1 and S2 protocol: cathode over right eye and anode over left ear. Every other week I switch it so that the cathode is over my left eye and anode over my right ear. I do this because I have RSD on both sides of my upper body and I have noticed improvement on both sides.

If Dr. Fugedy said to wait then stay hopeful and keep at it. Many of the best improvements came after a month or so of treatment...and the sleep improvements didn't start until 2 months in or so (and I'm still getting better with that). So keep at it and don't stress. Good things are worth waiting for.
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Old 05-31-2012, 11:08 PM #5
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Well it's been over three weeks two times a day and nothing, Nothing works for me! So frustrating
Hi Deb,

I am so sorry you have not felt a reaction to TDCS but please keep
Trying and keep in mind there are other protocals to try. I don't
know what the stats are but unlikely a person responds to every
protocal.

Joydee
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debbiehub (06-01-2012)
Old 06-03-2012, 06:48 AM #6
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Well it's been over three weeks two times a day and nothing, Nothing works for me! So frustrating
Hang in there Deb. When I get frustrated I try to focus on what I do have and can do instead of what is not going well. When I was in a wheelchair I had many a dark day.

When ever I caught myself saying or thinking "nothing works for me" I knew I had to immediately change my thinking. Changing your thinking can make a big difference in how you manage your illness.

For instance, it is wonderful that you can still work. Try to focus on the things you are able to do and add new small challenges each day. The tDCS is currently not providing you relief. That does not mean that it won't eventually work. Additionally, you have the best doc available to treat you with it.

Please don't loose hope. I just bet that your doc has some additional tricks up his sleeve if the current course of treatment does not yield improvements.
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