Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-23-2011, 01:33 AM #1
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Posting reply but don't know where they r going. No burning just stopped after 3 weeks. Just stated taking meds then. Sorry
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Old 11-23-2011, 09:47 AM #2
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Sorry that you are going through all this. The docs had me icing in the beginning too and wearing a boot for a couple of months (diagnosed an ankle sprain in the beginning). Did the burning stop before or after the block? The very first block I had didn't help with the pain but the whole thing with my leg getting ice cold went away (for a few months anyway) after that first block. You just never know with RSD...but it's a good thing if the burning has gone away.
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Old 11-23-2011, 02:23 PM #3
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Quote:
Originally Posted by catra121 View Post
Sorry that you are going through all this. The docs had me icing in the beginning too and wearing a boot for a couple of months (diagnosed an ankle sprain in the beginning). Did the burning stop before or after the block? The very first block I had didn't help with the pain but the whole thing with my leg getting ice cold went away (for a few months anyway) after that first block. You just never know with RSD...but it's a good thing if the burning has gone away.
The burning stopped before the block. Did yours spread to the other leg?
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Old 11-23-2011, 02:47 PM #4
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Mr. Bud

I read under RSD foundation, that us RSDers can have all the symptoms at once or just a few at a time. So think of your burning pain being at bay good news. That is one last thing you have to deal with.
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Old 11-23-2011, 04:07 PM #5
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Question Similar Neuropathic Burning?

Is this burning pain with RSD/CRPS the same as the burning pain associated with PN (Peripheral Neuropathy)? I'm wondering because I see mention of some of the same meds used to help control it.

Some of us with PN have had success controlling our burning pain, needle jabs/shocks, and cramping with various combinations of R-Lipoic Acid (RLA) (a newer stabilized form is being touted now), Acetyl L-Carnitine (ALC), and Pantothenic Acid (Vitamin B5). I'm taking 100 mg RLA with 500 mg B5 and 500 mg ALC every morning, and another 500 mg B5 and 500 mg ALC with supper, and I haven't had any burning pain or required any Neurontin, Lyrica, etc. since (though I still have some numbness and sensitivity to cold & pain).

So I'm wondering if those supplements might help the burning pain of RSD/CRPS(?) Worth a try?

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Old 11-23-2011, 10:45 PM #6
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Quote:
Originally Posted by MrBud View Post
The burning stopped before the block. Did yours spread to the other leg?
Not my other leg (thank goodness...it's nice to have at least ONE working) but it spread to my entire upper body between my waist and neck (including hands and arms). But I think all the icing and immobilization that they did in the beginning made the RSD worse. My spread actually occurred after a block...which was a year after my first block and with a different doctor.
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