Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-25-2011, 08:15 AM #1
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Default neck burning HELP!

My neck and upper back is burning really bad. It feels almost like indian burn. I just started cymbalta and already on gabapentin. I dont know what to do. Its sensitive to touch and creams and liocaine do nothing or make it worse. IS there anything else I could try?
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Old 11-25-2011, 08:51 AM #2
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Quote:
Originally Posted by bent98 View Post
My neck and upper back is burning really bad. It feels almost like indian burn. I just started cymbalta and already on gabapentin. I dont know what to do. Its sensitive to touch and creams and liocaine do nothing or make it worse. IS there anything else I could try?
Lyrica helped out pain sensitivity to touch with me. I first tried Neurotin but that didn't help much. Now I find much more relief with Lyrica and Cymbalta.
If you try this I hope it helps...
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Old 11-25-2011, 09:20 AM #3
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What doses gave you relief? Is it full or partial?
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Old 11-25-2011, 10:40 AM #4
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The Lyrica by itself brought on relief in the burning pain a lot. But my flare ups still got the best of me. I was already at the max at 600 mgs a day so my neurologist added Cymbalta to the mix. I'm starting at 30 mgs then after two weeks going to 60 mgs. It's been one week so far. Neither one is an opiate which is what I prefer to stay away from if possible. I still notice the presence of pain but except for flare ups it's more doable...
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Old 11-25-2011, 11:04 AM #5
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Originally Posted by jimbo View Post
The Lyrica by itself brought on relief in the burning pain a lot. But my flare ups still got the best of me. I was already at the max at 600 mgs a day so my neurologist added Cymbalta to the mix. I'm starting at 30 mgs then after two weeks going to 60 mgs. It's been one week so far. Neither one is an opiate which is what I prefer to stay away from if possible. I still notice the presence of pain but except for flare ups it's more doable...

With lyric i see people take dosage two or three times a day.

How do you take yours and what times?

Also you mentioned flare ups. I assume you have other issues other then burning?
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Old 11-25-2011, 11:18 AM #6
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As far as how I take Lyrica it has to be spread out because it only stays effective for around six hours. So my doses are 300 mgs at 9 am, 150 mgs at 3 pm and 150 mgs at 9 pm. The Cymbalta once between 10 and 11 pm before bed.
Other issues are my RSD spreading to my entire left side making putting weight on my leg hard and everything is complicated by also having degenerative cerebral atrophy...
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Old 11-25-2011, 07:10 PM #7
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Bent98,
Have you tried a TENS unit? I get relief sometimes. Also when I get ramp up pain, I take a brisk walk. I don't know if you can walk, but cardio output reduces the burning and helps me not fuel the fire emotionally. Sadly sometimes nothing works, I take xtra meds, use the tens, walk, cry, pace whatever, till it passes. I use DSMO cream and lidocain together sometimes, it helps absorb the medication in the skin. I also use DSMO cream daily with diclofenac gel all over for neurogenic inflamation. I use a 70% DSMO rose scented cream, I get through Amazon.com. They have unscented too. Don't buy the industrial solvent type, use the cream or gel. Some people get lidocain infusions, I have never had it offered to me. I asked for a clonidine patch to help calm my SNS, VA wouldn't do that either, but some pain clinics know about it. Ask your doctor after you research it on line a little to see if it would be indicated for your situation.
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Old 11-25-2011, 07:18 PM #8
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Bent98,
Have you tried a TENS unit? I get relief sometimes. Also when I get ramp up pain, I take a brisk walk. I don't know if you can walk, but cardio output reduces the burning and helps me not fuel the fire emotionally. Sadly sometimes nothing works, I take xtra meds, use the tens, walk, cry, pace whatever, till it passes. I use DSMO cream and lidocain together sometimes, it helps absorb the medication in the skin. I also use DSMO cream daily with diclofenac gel all over for neurogenic inflamation. I use a 70% DSMO rose scented cream, I get through Amazon.com. They have unscented too. Don't buy the industrial solvent type, use the cream or gel. Some people get lidocain infusions, I have never had it offered to me. I asked for a clonidine patch to help calm my SNS, VA wouldn't do that either, but some pain clinics know about it. Ask your doctor after you research it on line a little to see if it would be indicated for your situation.
Now that its cold outside I dont walk much. I did today. Cry alot.
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Old 11-25-2011, 07:50 PM #9
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My foot and leg hurts a lot when I try walking too. Even with my cane...
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