My RSD has been flaring up a little worse this week But I've also noticed that I'm getting a rash on both of my legs. It is probably RSD related because it appears whenever my RSD is flaring up.

thanks for all the info, my rsd was from hip replacement surgery 10 years ago. it was lower left foot, then leg, then right foot ... and i have either reynaud's in my hands or rsd ... who knows??? no on can tell right now. and nothing is fixable so what the heck! my hands get red and itch under the skin until it hurts if they get cold and they do get cold .... but do not swell.
the rash however is neck and upper chest as if i had on a scoop neck shirt, that area ... but my rsd has effected my bp and heart rate and i am on meds for that so it could be related to that.

Recently, I had a small but worrysome bout with blistering. They poped up in different places on my body... At first I thought it was shingles, but the doctor told me that shingles is confined to one nerve group and aree in large patches.

I had only one here and there. He told me not to worry, he did not know what they were, but to keep from scratching because of the possibility of spreading infection to the open sore.

They were small like a little burn, with clear fluid. They would itch for a bit, and burn and sting. Then the fluid would release and they would heal. But I was extremely careful not to scratch. They seem to have calmed now... I hope it stays as such.

Anyone had this happen to them with RSD?

Hugs,

Rain

What you are describing sound like RSD blisters. I had em same as you - different places on my body but not on one nerve so it wasn't shingles but looked simlar.

do a google search on rsd blisters and you should be able to find some pictures.

Mine were diagnosed by Dr. Daniel Carr who was an RSD researcher as well as a respected RSD doctor, so I believe that his diagnosis was correct( for that anyways)

I only got them once but one of them left a scar on my face of a tiny red dot for the longest time. It's still visible, but very faint.

Peace and hope,
Lisa

with the blisters. does anyone find they occur where the circulation is worst? My feet are very black but I have boiling blister like things over them.

thanks

froggsy.xxxxxxxxxxxxxxxxxxx

Frogga,
YES, Yes, Yes. Love, Roz xxx

But Why???? Hugs, Roz xxx

Hello,I am a very rashy person for the most part too. Lots of times it is actually the meds which are causing many of our extra problems, so it is a unfortunately a case of being " caught between a rock and a hard place " Many meds that are used for BP and heart rate issues are Beta blockers and they do tend to make you rashy as they dilate the peripheral blood supply.
Many of our meds make us sensitive to sunlight too, I know that 1 minute in the sun will give me a bright red rash on exposed skin for a couple of weeks.
I find that a very gentle steroid cream helps my rash when it is extreme but it is different for everyone. I think that having a consult with a dermatologist was good for me as it reassured me there was nothing too serious going on but just another byproduct of this puzzling condition?

Joan... I'm so glad I saw your post. I've had the very same problem. My rsd is in my left leg but I keep getting a rash on my upper chest and under my arms. The doctor can't figure it out. I was so desperate that I stopped my meds for a while but it didn't make a difference. I don't think its related to the meds. The only other thing I have wrong with me is the rsd...it has to be that. I haven't found anything that makes it go away...it just seems to do it's own thing. Hope you're finding some relief...Take care.

I Have Always Just Assumed The Rash Was From The Rsd, And Again I Get To Say .... There Is Nothing We Can Do To Fix It! Ha! It Seems That Is The Answer For All The Rsd Problems. Mine Comes And Goes For No Particular Reason And Feels Hot But Does Not Itch. So Be It ....
Whoops Sorry If I Offeneded But I Typed In Capitals Again, It Is A Habit But I Am Too Tired To Redo It .... Joan