Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

NeuroTalk Support Groups > > >

the rash

Reply
 
Thread Tools Display Modes
Old 04-04-2007, 08:24 AM #1
lisashea lisashea is offline
Junior Member
  
Join Date: Oct 2006
Location: Mansfield, MA
Posts: 45
15 yr Member
lisashea lisashea is offline
Junior Member
 
Join Date: Oct 2006
Location: Mansfield, MA
Posts: 45
15 yr Member
Default
What you are describing sound like RSD blisters. I had em same as you - different places on my body but not on one nerve so it wasn't shingles but looked simlar.

do a google search on rsd blisters and you should be able to find some pictures.

Mine were diagnosed by Dr. Daniel Carr who was an RSD researcher as well as a respected RSD doctor, so I believe that his diagnosis was correct( for that anyways)

I only got them once but one of them left a scar on my face of a tiny red dot for the longest time. It's still visible, but very faint.

Peace and hope,
Lisa
Quote:
Originally Posted by Rainbow422 View Post
Recently, I had a small but worrysome bout with blistering. They poped up in different places on my body... At first I thought it was shingles, but the doctor told me that shingles is confined to one nerve group and aree in large patches.

I had only one here and there. He told me not to worry, he did not know what they were, but to keep from scratching because of the possibility of spreading infection to the open sore.

They were small like a little burn, with clear fluid. They would itch for a bit, and burn and sting. Then the fluid would release and they would heal. But I was extremely careful not to scratch. They seem to have calmed now... I hope it stays as such.

Anyone had this happen to them with RSD?

Hugs,

Rain
lisashea is offline   Reply With QuoteReply With Quote
Old 04-04-2007, 08:37 AM #2
frogga's Avatar
frogga frogga is offline
Member
  
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default
with the blisters. does anyone find they occur where the circulation is worst? My feet are very black but I have boiling blister like things over them.

thanks

froggsy.xxxxxxxxxxxxxxxxxxx
__________________
It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone
frogga is offline   Reply With QuoteReply With Quote
Old 04-04-2007, 11:00 AM #3
buckwheat
Guest
  
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default
Frogga,
YES, Yes, Yes. Love, Roz xxx
  Reply With QuoteReply With Quote
Old 04-04-2007, 11:01 AM #4
buckwheat
Guest
  
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default
But Why???? Hugs, Roz xxx
  Reply With QuoteReply With Quote
Old 04-04-2007, 09:53 PM #5
frogga's Avatar
frogga frogga is offline
Member
  
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default
are they black and red?

because they are annoying and are going through a cultural and racist labelling issue... maybe it's late teenage rebellion?? my feet are trying to develop their own cultural identity?

or maybe they are trying to hint at all the film roles I could get with dead legs (just think, everytime the heroine dies there could be a shot of dead legs and feet).

sorry, only pulling your leg

hope your eye is doing better!!!!! Froggaxxxxxxxxxxxxxxxxxxxxxxxx
__________________
It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone
frogga is offline   Reply With QuoteReply With Quote
Old 04-04-2007, 11:06 PM #6
buckwheat
Guest
  
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default
Dear Frogga,

I know my circulation is involved. Which has alot to do with the lymph system.

If are circulation is even compromised we are at risk for severe infections. Their is a Dr Andrew Wright in the UK, I have heard he is hard to get in, but you need to be a top priority. Rosie you have your whole life ahead of you, forget your Brit manners be pushy. Doc's that are hard to get in are usually good.

I beg of you not to feel bad. This horrid RSD is not a matter of shaping up or putting one foot in front of the other. I have dear friends who are healthy RN's who do not have a clue.

I know I haven't met you face to face, but you are one of the most beautiful, lovely person's I have ever known. Hugs, Roz xxx
Last edited by buckwheat; 04-04-2007 at 11:52 PM.
  Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Hybrid Mode Hybrid Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
suggestions for skin rash/sensitivites? Jomar Vitamins, Nutrients, Herbs and Supplements 15 03-30-2007 10:01 AM
Has anyone else had this kind of "rash" or what ever it is?? RSD_Angel Reflex Sympathetic Dystrophy (RSD and CRPS) 18 02-22-2007 04:06 AM
grumble grumble a rash on bella... sleepingbean Gluten Sensitivity / Celiac Disease 6 12-09-2006 12:24 AM
Derma Rash Question turner Gluten Sensitivity / Celiac Disease 1 09-21-2006 03:39 PM


All times are GMT -5. The time now is 07:59 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home