Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-30-2011, 09:40 AM #1
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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15 yr Member
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When my RSD spread after a block at the end of January this year my pain doc referred me to a neurologist because of all the weird symptoms I was having: blurry vision, dizziness, nausea, loss of balance, tremors, and a host of other things as well. I had to go for an MRI of my brain to check for MS but it came back normal. Then I was bounced around from one doctor to the next as they tried to figure out what was wrong with me. Final conclusion was (as I feared and expected) that the RSD had spread and gotten worse.

But all of the doctors who bounced me around (PMs, neurologists, rheumatologists, infectious disease doctors, chiropracters, etc) did not know that RSD can cause these things. To be honest...in the beginning neither did I...but I knew the pain that I was now having was likely spread of my RSD so while I was researching spread and all the other symptoms I had I realized that these can ALL be caused by RSD. I am happy we ruled out all the other stuff of course...because RSD can cause all sorts of weird stuff but if you just assume it's the RSD you could miss something huge like MS and not get it taken care of until it gets worse.

My PCP that I am seeing now was the first and only doctor who agreed that the symptoms were related to RSD and the spread of my RSD after the block I had in January. She is very open minded and willing to do the research necessary to help me overcome these things. She is also willing to look over anything that I find to see if it is something worth trying.

Finding the right doctor is a real pain...but totally worth it once you do. Even though your symptoms could be caused by RSD it is important that you get all the other stuff ruled out that could also be causing the problems. MRIs are terribly painful for me now with RSD...I agree that it's probably the vibrations and sounds that cause it to be this way.
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