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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() Anyhow, I thought of some of you today regarding a prior thread about hand, body temp's and getting things out of the freezer and just holding cold things. Well, on my way to the injection I had my 8 oz. plastic orange juice bottle (which I never carry anything but my thermus cup with handle) and my hand was FREEZING. I seriously took 2-3 sips out of this bottle and drove thr remainder of the 15 minute drive with my hand right up against the heat vent!!! My poor mother was sweating because I had the heat blasting (even though she closed her vents). So I have a question: ![]() ![]() ![]() ![]() ![]()
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"Thanks for this!" says: | AintSoBad (11-30-2011) |
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#2 | |||
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Sonny,
You're not going nuts. I'm very sensitive to cold too. When in the car I close off the vents when my wife has the A/C on and the house is kept warmer than usual. Once I sat out in the yard in the sun wrapped in my winter coat and thick jeans freezing and it was 95 degs out! Sometimes I'm hot, sometimes cold, but never the temp as it really is. It's like my body has a mind of it's own. And the flare ups, grrrrr. I just wanted to let you know you're not alone...
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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#3 | |||
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Quote:
![]() I really am getting more used to it all as it has been this permanent for over a year now, but WOW. Now throw in the hot, the cold...one layer off, two on, I have sweaters and jackets all over the house and about 27 blankets laying around! (slight exaggeration) ![]() Well thanks Jimbo for sharing! Glad to know I am not alone. Sorry I keep rambling, I'm going to lay down, whtever they injected in me today really put me in a mood ![]() Have a good night!
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"Thanks for this!" says: | AintSoBad (11-30-2011) |
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#4 | |||
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Senior Member
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I am definitely super sensitive to the cold and as for the heat I tend to not feel it unless it is REALLY warm. BUT...I also sweat a lot now which I never used to do before and this can happen even when I am cold...very odd. I know it's the RSD messing with me...but I make sure that I always have layers (at least something with long sleeves), always have on long pants, keep a scarf and gloves in my walker, wear socks whenever I leave the house (on the off chance a stray breeze or blast of AC hits my RSD ankle I want protection)...it's nuts. I know people have got to think I am a thundering looney when they see me all layered up like that when it's 70+ degrees outside...but what do I care? I'm just happy any time I am able to just leave the house!
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"Thanks for this!" says: | AintSoBad (11-30-2011) |
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#5 | |||
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Oh yes...and there are (as I type this) 4 blankets on the couch next to me ready should I need the extra warmth.
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#6 | ||
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In Remembrance
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During my first 15 or so years with RSD, I was the same, as you all say, very susceptible to the cold.
I use to this day, lots of 'Patagonia' underthings, especially shirts, they make t shirts, zip t shirts, long or short sleeve, and of different weights silk weight, to heavyweight. It's called 'Capaline'. Don't not get a couple for yourself! I have nothing to do with the company, nor do I even own stock. But, go to www.patagonia.com and search Capeline. (Sp) Sorry, someone will pop in to help you in about ten minutes. I swear by this stuff, it's made of recycled plastic soda bottles and it WIll NOT get Wet! It quickly wicks all perspiration away, and you don't get that 'Second effect Chill'! Which is nasty. Anyway, I had a 2nd accident, which (as you might tell) caused a head injury. Now, of all things, I can't stand Heat and Humidity! Figure that one!? I'd rather dress well, (with patagonia stuff), than hafto sweat in the heat! I like cool, LOW HUMIDITY. By cool, I mean 60 - 70 degree weather. I cannot take or stand, 80+ with humidity. And, we cannot forget the Barometer! When it's falling, or low, it hurts. When it's going up, or is high, better, much better! Problem is, I've no idea, if this (the temperature thing) is due to the second accident, or if it's just because my rsd is so far advanced. 28+ years. We Persist, and Carry On! Be well all! p asb |
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