NeuroTalk Support Groups - RSD Photos and Pictures Thread

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - RSD Photos and Pictures Thread (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/16167-rsd-photos-pictures-thread.html)

Quote:

Originally Posted by r.s.d.sucks (Post 566450)

hi, ive had rsd for 3 years now and i know what your talking about, the purpilsh almost like a bruseing ur getting isnt a bruse. its acutly your skin changeing color due to verous things takeing place. its one of the big key markers for rsd ,, well not the main but one of the things they look for. its not a rash jsut basicly a symtom of rsd. the burning your talking about i know that pain very very well, i have tryed billions of meds procidors and just things ud never belive some one would try. all in defet. ive talked to others online with rsd and they too have yet to find anything to help with that pain, im sorry to tell you.
what i get are blisters can be from the size of a pea up to a grapfruit, evently the skin dies and flakes off. the funny part is when i first got one, i went to my doc about it cause i noticed a some what raised red full circle forming on my skin, he tested me right away for a fungal infection, and sure enough it was negative.a week later it blisterd up and talk about pain, it took 2 weeks before it finaly burst, and honestly im not sure with was more painfull, the blister or the bursting. anyways ive continued to get them off and on no rhyme nor reson, jsut a symptom that apprentlty isnt commen for rsd but dose happen. i have found one other person who gets them as well. what i want to warn evry one about is. these rashes before they turn to blisters look very very simular to ring worm,, witch is a fungal infection of the skin, and most doctors are very fast to tell u that is what it is, when in fact for the most part its not, it is jsut your rsd giveing u new fun pains. so pls if any one gets one of these make the doctor take a skin scrap sample and check it under the mic so that u know for sure if it is or isnt., there is care that is needed to be taken when u get theses blisters from rsd. im putting up a pic of one i currently have, it started to form about 4 days ago, and i will try to put more pics up as if developes for evry one. has any one ealse with rsd gotten theses things im very curious seeing as ive only spoke to one other person and she lives acrosed the country from me and the docs that do know about rsd say its really very uncommen symptom but dose happen. i hope this helps you guys out some

I get these too.. mine heal from the center usualy and tend to look like ringworm as they heal.. but they are not, the skin grows too fast as it heals and flakes off, underneath is new but knarly red skin that can scar if the outer layer comes off too fast (before it heals up below). Another unplesant part of RSD eh?

Sounds like me I get little pin size blisters that itch and have clear water like something in them.

So this is my RST- Its been 7 months and its gotten to the point of me being in a wheel chair, but well see what happens :/

Quote:

Originally Posted by Sandel (Post 582223)

Im getting the nerve block shot monday.... 8 months post bunion surgery and i got RSD...:mad:

Quote:

Originally Posted by Sandel (Post 582223)

I got the nerve block in my back for the RSD in my left foot. It seems to be helping the swelling.. My foot dosent get all red a swellen anymore. I have my follow up today. They also gave me a cream to num my foot... 1% ketamine .5%creAM... I think the cream might be working also to help with the pain I have. I have bone tendon and nerve problems as a result of bunion surgery..

Those feet look like my feet!

Quote:

Originally Posted by InHisHands (Post 82906)

RSD in both feet/ legs- worse in left

Swelling/color changes in left, slight color changes in right.

Thanks for the VERY HELPFUL photo... could be my feet in that picture!

Will have to see if I can get into a proper doc ASAP. The ER doc and endocrinologist caught mine... This has been going on entirely too long.

Now to find a specialist... Anyone know a good doc in the Los Angeles, CA or Santa Barbara, CA areas?

Those feet/ hands/ etc look familar!

LOL

The rash is called dyshidrotic eczema btw, it is common with RSD.

I was surprised to see so many pictures of my feet/ hands, LOL.../

about your pictures

After reading your blog and looking at your pictures,
My Mom's foot, and calf area look identical.
She has the same dry skin like rash on her foot, area, and at one period in time, her skin would swell so much that it actually gave way, and began weeping for about six months.
We haven't tried any type of lotions on it, because it causes too much pain to touch her skin, but as far as the episom salt, we did the 30 minute soaks and it did seem to help perk her skin up slightly.
I hope this helps, and if you have any questions, feel free to contact me. :-)
Thank you!
-MyMomsAdvocate

Quote:

Originally Posted by mymomsadvocate (Post 630679)

Since the epsom salts works some, this is something else to try:

http://www.kirkmanlabs.com/ViewProdu...ct_ID@124.aspx

This product helps magnesium get into the skin and blood vessels and dilate the constricted blood vessels that are impairing circulation. It comes with a measure/scoop, 100mg/gram. I would not use more than 400mg a day (4 scoops)
If this starts to work, then oral magnesium would be the next step. Once the little vessels open up, the circulation improves, and then the oral can take over:

Here is my magnesium thread:
http://neurotalk.psychcentral.com/thread1138.html

RSD is part neuropathy part circulatory. I would contact the doctors and make sure she has good kidney functions. The RDA for magnesium elemental is about 400mg/day. Most people do not eat magnesium rich foods anymore so can be very low in this essential mineral.

I had a patient with black fingers... who failed on all vasodilatory drugs. She had scleroderma. I started her on the epsom salts soaks 3 times a day with natural vitamin E (which you can do too)... 800 IU per day. When she started to respond, we moved to the oral magnesium, and she got her fingers back. --it took a couple of months. (and avoided amputation which was the dramatic next step). She was so excited, she had me invited to the State's scleroderma society yearly meeting, and I gave a talk for all of them that day!

This simple thing can work wonders. It will not "cure" RSD, but I think it will improve comfort considerably. I have other things you can try, but do this first.

You are a very good daughter to try and help your Mom. She is lucky to have you.

Quote:

Originally Posted by Jo*mar (Post 486220)

Sometimes we are missing out on welcoming new members when they post here in the Photo & pictures thread.

If we can keep this thread for your RSD pictures & photos,
and post discussions in the forum, that would be great.:grouphug:

Reflex Sympathetic Dystrophy Forum (RSD and CRPS)
{main threads & posts area}
http://neurotalk.psychcentral.com/forum21.html

New members, please be sure make a post or thread on the main RSD forum, so all can greet you and reply there.

Follow this link to start a New Thread -
http://neurotalk.psychcentral.com/ne...newthread&f=21