NeuroTalk Support Groups - RSD Photos and Pictures Thread

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- - RSD Photos and Pictures Thread (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/16167-rsd-photos-pictures-thread.html)

I am trying to figure out how to do photos. Wish me luck lol

I am enjoying this site and talking to others. I just wish I could figure everything out. Lol. This is pics of my CRPS feet

RSD Photos and Pictures Thread

http://images.tapatalk-cdn.com/15/10...6b5f4ee824.jpg http://images.tapatalk-cdn.com/15/10...e115ee441d.jpg http://images.tapatalk-cdn.com/15/10...8f1acd1923.jpg

Sent from my iPhone using Tapatalk

First pic is right after my second procedure
Second picture is about 3 weeks after first procedure. I was swollen free for about 3 weeks
Third pic is right before 1st procedure.
http://images.tapatalk-cdn.com/15/10...511507d8e9.jpg
Fourth pic I right after first procedure

my feet look similar, but I thought I just had ugly feet! My RSD is in the left arm but has spread to my right arm, left leg, abdomen, and left booby! No fair! What do I do?

Quote:

Originally Posted by Dhall748 (Post 1179502)

my feet look similar, but I thought I just had ugly feet! My RSD is in the left arm but has spread to my right arm, left leg, abdomen, and left booby! No fair! What do I do?

I am sorry to hear your CRPS/RSD is spreading this is a horrible condition. I hope I can help you. I have full body CRPS for over 15 yrs now & have it even throughout my organs (ovaries are just lovely to deal with during certain times of the month).
Here is what I have learned in dealing with my flareups: NEVER immobilize area no matter what (tricky when you break something) but this will only make the CRPS rear its ugly head 1000X stronger/longer, but elevating for max 15 minutes is helpful. No matter how painful keep using limb (ex when in my hand I pretend to play the piano, or in my feet rub not only the feet but toes as well.
Stimulation is key is keeping circulation going (I use a deep moist heating pad to penetrate muscle deep down) soak in warm Sea Salt water or mineral hot springs as often as possible, keeping the skin moist by using mineral oil or baby oil gel helps a lot; take evening primrose oil to help reduce inflammation, wear loose clothing nothing tight on skin (fleece has been a lifesaver for me) even type of shoes/slippers is huge, I cannot have ice/cold but if you can alternate between ice & heat;

Desensitizing skin is another key which I use a variety of methods: gently rubbing different types of material across effected area sometimes just using warm washcloth back & forth then drying it off works. Always keep in mind of what works but don't get too frustrated when that stops working because it might just be a timing thing. Usually it takes several different approaches & several days to work thru the flareups, but eventually it goes back to normal (well as normal as we are faced with).
I have many more but don't want to overwhelm you with it all & hopefully some of these will work for you right away. Please let me know if I can be of further help.
Gentle hugs

My left foot just recently started to have the symptoms, but it swells more than my right. My right foot usually is some weird colours, purple, blue...I've asked the doctors and told them "purple is not a normal foot colour for me!" But..Well they've been useless. Gah.

Attachment 9232

Attachment 9233

Attachment 9234

Aren't they just so pretty (sarcasm)

hand and foot crps

Quote:

Originally Posted by DDayMBB (Post 110763)

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

Hi, yes, absolutely my feet have looked and felt just as bad. I could swore both were at the very least sprained with a severe sunburn. I could hardly walk, had to manipulate both feet to a specific position in order to walk.. Severe redness, severe swelling to no swelling what so ever.. PT.. I can not stress it enough, physical therapy is such a critical tool in getting the garbage back into remission.. Best of luck

Hammer

Yes....have horrible swellings, discolorations and misshapen body parts too.

. THIS is my first day so don't know if anything is getting through. RSD full body Illinoin here who is annoyed...lol with all the bizarre symptoms as your describing. Anyone out there??

Quote:

Originally Posted by DDayMBB (Post 110763)

I figured I'd add to this xp
Today is actually a good day so not too much swelling, but sadly still the same amount of pain. If I was able to take a pic of the bottom of my feet I would. I have terrible blister like things that form and then pop and bleed. Also the sides of my feet are starting to crack completely which obiouslt causes bleeding. Attachment 9389

I also can't seem to figure out how to add a photo so I hope it worked lol

mrsD, thank you for the great advice! I have been trying epsom soak for my hands, but it did not seem to help much. Maybe I am doing it for too short of a time (25-30 mins each hand) or too low concentration. I am taking magnesium orally and magnesium test came back with 2.1 m/dL with norm being 1.7 - 2.3. How should I take vitamin E -orally or topically? my hands are not black yet :=), I just got this thing 5 months ago, but it is moving fast, I am trying to stop it and hopefully maybe to recover.

Many thanks in advance!