[Sandel]

Originally Posted by bubbleshea

My daughter has always had these with the RSD. they can also happen internally. Some of her pics are posted on this thread

Ohh wow I am sory to see that symptom, I have friends who swear by Emu oil for that kind of ulsers.. hmm but you say internaly it sounds like you may want to look into researching IV Imunigloben for your doctor.. I will see what I can find and get back to you too.
be well,

~ Sandra

[pacugirl]

Originally Posted by bobinjeffmo

I hope these pictures won't scare anyone, but trust me, RSD can get really bad. This past January I finally had the left leg amputated above the knee and we're just hanging on tight till we loose the right leg. It's not if I'll loose that one, just when.

The RSD started in the left leg in 97. 4 years ago it crossed over to the right. Now talk about spreading fast. Between circulation, chronic infections and blood clots, it's always something yet I just grin and bear it with a bad joke or a laugh. Laughing is always better than crying.

Even though RSD is hard to live with, I only have to remind me of what it would be like living with his awful disease in another country such as India or Russia. Then what would life be like on a daily basis? I know my blessings, I hope everyone else remembers them too. Bob.

I'm new here and skimming through posts and threads I just saw your pictures and comments.
Bob, What an incredibly wonderful attitude you have. I know we can always think of someone who is worse off than ourselves and I try to do the same thing, but you've obviously had severe RSD and continue to keep positive.
Thank you for reminding me to not feel sorry for myself or dwell too much on RSD and it's affects in my life.

[buppy911]

These photos are of my left hand about a week after surgery and then again after about a month or so. It has been 3 months since surgery now and I can't get rid of the swelling and the redness comes and goes.

[Raymond]

Originally Posted by DDayMBB

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

I'm really sorry about your hands, it doesnt look to comfortable.
my foot sorta gets that bad in the winter time. I never go out, i peak my head out in the winter but thats really it. here are some pics of my foot, I KNOW, they are ugly but it hurts. can't get the brouse to bring up pic but probably for the better...lol
I hope you feel good today!!!

Ray

[burntangel]

i have had rsd for three years, it started after i had surgery on my elbow following a work related injury. first the burning swelling in my arm and than my hand, than it spread up my shoulder,my neck,face,my upper back,it skipped from the bottom of rib cage to my hip and picked up again and spread all the way down my leg to my toes.
i have had four surgeries including the elbow and the last was a scs in april of this year. now i am suffering from helasious muscle spasms all over my left side and my doctors dont know what to do next. any ideas? help

[BulldawgOnFire]

Originally Posted by DDayMBB

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

Actually worse. Am heat sensitive (10% of us) and full body CRPSII so count your tiny blessings. Gd Lk

[loretta]

Originally Posted by burntangel

i have had rsd for three years, it started after i had surgery on my elbow following a work related injury. first the burning swelling in my arm and than my hand, than it spread up my shoulder,my neck,face,my upper back,it skipped from the bottom of rib cage to my hip and picked up again and spread all the way down my leg to my toes.
i have had four surgeries including the elbow and the last was a scs in april of this year. now i am suffering from helasious muscle spasms all over my left side and my doctors dont know what to do next. any ideas? help

Hi burntangel, So sorry you have RSD following surgery. SC should be paying your bills and caring for your health.
I also got RSD following surgery. Physical Therapy , Swimming, Massage therapy, desensitization thru therapy and at home helped. Also used a Tens Unit.
The spasms can be controlled with anti-seizure meds. i took 3200 mg of neurotin. My electric shocks, spasms were full body. Another option is Lyrica. Both cause weight gain. But I don't have the shocks spasms anymore and I gradually went off the neurotin. Maybe have muscle spasm once a month.
Hope you get some helps that helps. your friend, loretta

[lorigood243]

Thank you for posting the pic of your arm. I have intrenal RSD and have a great deal of swelling on my abdomen and hernited discs in my lower back. All of this cause me to use a walker on wheels and walk bent over. My left arm just recently became injured with swelling and pain and I think its RSD. It looks similar to you pic and you mentioned it was from the pressure of your crutches. This Illness is jut bizarre! I wish that a small percentage of the money that goes towards cancer research could be used in helping RSD patients. It just doesnt seem like much at all is being done. Better days to come for us all I pray!
Thank you again for posting your pictures.
Lori

Originally Posted by ali12

Hi everyone,

Here's a few pictures of my RSD leg and arm. They aren't right good but you should be able to make them out OK hopefully!



Dystonia and RSD in left leg - this isn't a very good picture but you should be able to make out the rotation and the swelling. This was taken a few months ago and my leg is now much more rotated than in this picture - I will try and take some more pics later.



RSD flare and really bad swelling in right arm. This flare was caused by putting too much pressure through my crutches.



RSD bruising and a "bump" where the swelling was. The bruising got much worse after this pic was taken and my whole arm went red and blue

I hope these pictures help some and if anyone has any questions, please let me know! I will try and get some better pictures of my leg later.

[DebraKosbar]

Could u tell me how to get some new pics for me thanks. Have a great day...

[Chemar]

Hi Debra

here is the link to the tutorial that can help you post pictures.
http://neurotalk.psychcentral.com/thread7728.html

You can also attach them to your post as you would to an email. Use the Manage Attachments button below the posting box to do it that way

hope that helps