[Jimking]

I thought applying ice-packs to RSD pain was not recommended? Also, what is SOMA.

[elijjennings]

My doctor does not recommend ice packs for RSD. Although other docs have told me whatever makes you feel good is what you should do for your body. Also, SOMA is a muscle relaxer. Although technically it isn't a "true" muscle relaxant from my understanding. Just a newer drug.

Here are my RSD Pics if this works right....

[ballerina]

Originally Posted by DarlaDaniels

I too would say do not worry about that. I have had to change or switch back & forth to different meds many times, with the long-acting because my body would build a tolerance. As for the short-acting, I could not survive without my SOMA, either & the insurance has tried many times to say that it is not needed for RSD/CRPS....I wish they could get this to find out how well they would do without it. I also use NORCO for pain which works great for me & without the side effects so many others have. I took Morphine for years but I switched out of it about 8 months ago & now use the Fentnyl patch for long-acting & am much happier with it. However, as I have found with all long-acting's I have been on, none of them work as long as they promise & I find that the short-acting is what saves me.
Washington State recently passed a Chronic Pain Bill that has capped the amount of pain meds our doctors can prescribe to us if we do not have cancer.....YES, they word it just like that. Cancer pain & everyone else with NON-CANCER related pain. Us NC patients are now subjected to more consultation with yet more doctors (like we haven't seen dozens already) to get the correct dosages to allow us to live a somewhat functional life. So, as it said in the previous reply....don't worry about what meds, just worry about if you will be able to get your doctor to prescribe the dose you need to control it.

Do the newer drugs work as well for you as the morphine ?

[SOTIRED]

Originally Posted by DDayMBB

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

I'm new at this also and can't figure out the reply area. Your pic looked like my hands last Feb. I've been diagnosed with Erythromelaglia, but I think I have RSD/Crps. My hands and feet turned surper red and burned so bad I cried for weeks. I sweat so much, then get cold, then hot, turn on the heat and a fan. I sleep alot and can't seem to control much of it. I do take gabapentin and this really helps. I did this on my own from sites or just google.

[kimberlyluv]

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

i have had rsd and cprs 2 for over 7 years i have been on cruthches for over 7 years and i have not sat or layed normal for over 7 years! i got it from a injection that was suppose to be normal in the hip well when she was giving it to me i freaked begged her to stop the pain was unbarable i new something was wrong shocking stabbing burning clear to my foot she finished the injection anyway and after i could not walkthey were rude to me didnt care come to find out she was not certifi give injectionsand didnt measure and stuck the needle right in m y sciatic nerve and to top it off the medica she used she did not dilute it so it was like acid it fried my sciatic nerve so that caused sciatica palsy calsgia rsd cprs2 can not be touched hypersensa bad toe nails are like crackers in both legs now going to arms and hands legs are ugly cant bend knee toes right after the shot i could not neither but anyway its ruined my life hard on my kids i am barly hanging in have tried to end it at times!! but i have been on morphine for 7 years and perco and have been on the same dose for 2 years u get ammuned to it after awhile it is barly helping me now just tried the calmare not good exper but going try again with a doc i hope knows how to run the machine this time! and also my doc i had who specali in rsd cprs2 one of the main doct in ut county just retired so i dont have a doc right now neither no insurace again ssi did legally declare me disabled for life but cant get medicare yet trying for medicaid was on that but making me redo it! i would try the morphine it has helped me alittle with pain but nothing has helped me to be able to sit down and put pressure on my right bottom and leg but not comman for someone to get a injection in the sciatic nerve neitherthat is why others with rsd and cprs can sit but i cant bcause mine was a direct hit and direct burn to the sciatic nerve! anyway i hope u have a nice time with ur family! and do try the morphine they can up the dose when get immuned to it

[Abbie]

JUST A REMINDER...

Please post on the main RSD forum. Everyone is important!!! We don't want anyone to get lost or forgotten!!!

Many posts get lost on this thread (RSD Photos and Pictures Thread) as this thread is not often looked at or read.


If you are replying to a thread here, and you want to make sure it gets read, you can always

1. click on quote...
2. then highlight the quoted information... right click, click on "copy"
3. Click on your browsers back button twice.
4. Click on New Thread
5. Right click in the main section... then paste.
6. Don't forget to put something in the title section... ie...attn--the person quoted.
7. After the quoted section you can write whatever you need to ask or talk about.

Thanks,

Abbie

[hear4]

I, too, know the pain. I keep searching for relief. I pray for all with any kind of pain. That soon there will be no more pain. My prayers are with you all. Love and God Bless all of you. I know. Your friend hear4

[egglet]

Originally Posted by buckwheat

My husband said it is to big of a document. How do I make the photo smaller, in other words down size? Hugs, Roz

Load the picture into software like Paint or Picasa or some such. Then either crop the photo (you will lose some of the picture) or use the resize function.

[Fattieratties]

Hello everyone, I'm glad this thread bought my eye. Her are some pics of mt left for and ankle on one of outers best days. Btw I was diagnosed with rsd in 1998. Ok, for some reason it won't let me post any pics but is you go to my profile the pics are in one of my albums.

[alt1268]

Welcome to the group. This has been a great place for me and sometimes a life saver. We are all in the same boat just at different stages. Feel free to rant, rave or help others in the war against this horrible monster.
btw- you have a beatiful daughter and I am sure she is the light of your life.