Quote:
Originally Posted by JoDes
Thanks for your concern of my daughter's needs. I'm aware of quite a few RSD sufferers that also have Gastroparesis, but her doctor did not diagnose her with this, he just said she has acute gastritris. At this time, I'm searching for another doctor, hopefully, one that is comfortable with RSD and GI issues. Unfortunately, I'm limited to funds because I'm not able to work because of my health issues, and the only doctors that may be able to help her are out of state or within PA, but do not accept her health insurance. Her current doctor basically decided the medication that he's prescribing is enough to help her condition, and choices not to follow through with anything further.
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I'm very sorry to hear this. It doesn't sound like your current doctor is doing anything to really help ease your daughter's pain and discomfort. Sounds like she is going through a lot and it is terrible for someone so young to have to go through that. I hope you find someone soon who can help her.
In the mean time maybe trying the change in diet would be beneficial to her. No guarantees...but it's worth a shot. The 4 F's diet has been good for me. If the gastritis is the result of some of her other problems, then maybe you need to look into seeing if there are any treatments that can help get those symptoms under control, which may in turn help with the gastritis.
Just as a side note...has she had any issues with the Cymbalta? I know it made me VIOLENTLY ill when I started to take it...I consistently got sick 30-45 minutes after taking it. Or has she started any other medication around the time she began to have the gastritis problems? There are usually other medications that can be tried that maybe she would do better with that would have less side effects. Or sometimes it's the combinations of meds. Has she tried Lyrica or Neurontin instead of the Cymbalta? Lyrica worked the best for me and I didn't have any stomach problems when I took it. Neurontin is supposed to have less side effects than some of the others (though unfortunately it gave me personally no relief).
RSD caused the dizziness, loss of balance and coordination, blurry vision, increased heart rate, and blood pressure problems for me. Has she had these problems before or just after she got RSD? I only ask because these are not all symptoms that are typically linked with RSD, but can occur as the condition worsens because of the malfunction of the sympathetic nervous system. If the root cause of some of these problems is the RSD itself then maybe there are other treatments which may help get those things under control. Since I went on Clonidine patches (a treatment I read about on Hooshmand's RSD Puzzles and took in to my doctor) this has helped tremendously with the dizziness and blurry vision. Just something to think about, particularly if other treatments are not controlling the other symptoms.
Good luck to both of you.