newbie question about symptoms

scots ox · 01-18-2012, 10:47 AM

I have had this fill body for 17 years. I survived by a mad exercise program but now have a back problem and cant train. Its gone into my spine and brain giving me night spasms that throw me around. I believe other people have had this but would like to know because as usual the British doctors havent got a clue. They still think the pain can be stopped by brufen.

catra121 · 01-18-2012, 10:05 PM

Quote:

Originally Posted by scots ox

I have had this fill body for 17 years. I survived by a mad exercise program but now have a back problem and cant train. Its gone into my spine and brain giving me night spasms that throw me around. I believe other people have had this but would like to know because as usual the British doctors havent got a clue. They still think the pain can be stopped by brufen.

I had my RSD spread into my back after a lumbar sympathetic block last January. From there is went into my neck, down my arms, into my hands, to my sides, my chest, and stomach. After this spread I started to experience a whole lot of symptoms which included the full body spasms, loss of balance and coordination, nausea, blurry/double vision, and a whole laundry list of other things. What other types of things have you had since it spread? Just the body spasms or other things too? We tried a lot of different things to get all this under control...lots of trial and error. Maybe one of the things I tried could help you...

alt1268 · 01-19-2012, 03:28 PM

I went through a bad bought on Tuesday. Monday my clondine patch came off. (my change day is wednesday) so I was trying to hold off. Well by Tuesday afternoon, I was taking muscle relaxor's my lower back hurt so bad. I am wondering if I have spread, but my patch's are blocking the pain.

catra121 · 01-19-2012, 06:34 PM

Quote:

Originally Posted by alt1268

I went through a bad bought on Tuesday. Monday my clondine patch came off. (my change day is wednesday) so I was trying to hold off. Well by Tuesday afternoon, I was taking muscle relaxor's my lower back hurt so bad. I am wondering if I have spread, but my patch's are blocking the pain.

I'm so sorry Alt...does not seem like a good couple of days for you. I am so paranoid about my clonidine patches coming off...since getting them I have been doing so much better with the nausea, dizziness, poor balance, blurry vision, etc. And just overall I feel better because I don't have those things happening as much...not unless the pain gets up to that 9-10 level. So if I have any trouble getting the clonidine patch on I put the little pad over it that came with the patches...same goes if it feels like any of the corners are loose or anything. I hope you feel better soon...and hope to God that you are not experiencing spread.

ginnie · 01-19-2012, 07:53 PM

I am glad you found Neuro Talk too! This site has some wonderful people here. You will make some new friends. You have found the RSD and CRPS forum and I know there will be some people to answer you questions and talk to you. Sorry you have the condition. There should be good information here, and direction. Take care. ginnie

alt1268 · 01-20-2012, 08:23 AM

catra,
It's funny because my husband woke to find the patch was on him. lol.Yeah! I hope its not spread, I can't afford it to be in my back. Just the thought scares me.

Quote:

Originally Posted by catra121

I'm so sorry Alt...does not seem like a good couple of days for you. I am so paranoid about my clonidine patches coming off...since getting them I have been doing so much better with the nausea, dizziness, poor balance, blurry vision, etc. And just overall I feel better because I don't have those things happening as much...not unless the pain gets up to that 9-10 level. So if I have any trouble getting the clonidine patch on I put the little pad over it that came with the patches...same goes if it feels like any of the corners are loose or anything. I hope you feel better soon...and hope to God that you are not experiencing spread.

Brambledog · 11-21-2012, 07:49 AM

Quote:

Originally Posted by macartums

hey all,

i am brand new to this site & i am so very glad i found it! i know i'm going to be doing a great deal of reading for the next few days... i was diagnosed with rsd/crps in my right calf, foot & toes several months ago. i have had the same symptoms that i was diagnosed with until last night. i was not able to get a hold of my dr. today to ask if what i experienced last night (& now today also) can be contributed to the rsd/crps so i thought i would try asking here.

it feels like someone is sticking me with a needle on the top of my big toe, pretty much on my cuticle, right where the toenail meets the skin. it will come & go, lasting probably 30 seconds to a minute each time. it is so painful that i probably jumped off my bed the first time i felt it. after about an hour or so of that pain starting, i got the same sensation with the same amount of pain on my calf. it seriously feels like someone is poking me with needles.

does anyone know if this kind of sensation & pain can be attributed to the rsd/crps? i appreciate any & all input on this issue.

thank you in advance!

macartums

Hi,

I found your post because just this morning I had the most intense and awful electric pains right through my right foot and less so in my left. Deep stabbing needle pains. Eek. Lasted about twenty minutes, and made me jump each time. My hands felt tingly and numb as well, but that faded and I think was just shock!

I was diagnosed with CRPS in October 2011. It started in my left knee following a simple arthroscopy, but is now having some dark fun in my left foot as well. I've not had symptoms in my right foot before, although have had a few instances where the big toe went very hot red and painful for a couple of hours. I've been hoping that was just freaky rather than more spread, but these pains this morning scared me!

So no, I think the CRPS can do terrible things to you at times, normally just when you think you're starting to get somewhere

I'm on Pregabelin 500mg a day in 2 doses, sometimes unsure what are symptoms and what are side-effects!! Hope you're feeling a bit better now.

All the best to all of us

Brambledog

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