Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-18-2012, 10:05 PM #1
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Originally Posted by scots ox View Post
I have had this fill body for 17 years. I survived by a mad exercise program but now have a back problem and cant train. Its gone into my spine and brain giving me night spasms that throw me around. I believe other people have had this but would like to know because as usual the British doctors havent got a clue. They still think the pain can be stopped by brufen.
I had my RSD spread into my back after a lumbar sympathetic block last January. From there is went into my neck, down my arms, into my hands, to my sides, my chest, and stomach. After this spread I started to experience a whole lot of symptoms which included the full body spasms, loss of balance and coordination, nausea, blurry/double vision, and a whole laundry list of other things. What other types of things have you had since it spread? Just the body spasms or other things too? We tried a lot of different things to get all this under control...lots of trial and error. Maybe one of the things I tried could help you...
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Old 01-19-2012, 03:28 PM #2
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I went through a bad bought on Tuesday. Monday my clondine patch came off. (my change day is wednesday) so I was trying to hold off. Well by Tuesday afternoon, I was taking muscle relaxor's my lower back hurt so bad. I am wondering if I have spread, but my patch's are blocking the pain.
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Old 01-19-2012, 06:34 PM #3
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Originally Posted by alt1268 View Post
I went through a bad bought on Tuesday. Monday my clondine patch came off. (my change day is wednesday) so I was trying to hold off. Well by Tuesday afternoon, I was taking muscle relaxor's my lower back hurt so bad. I am wondering if I have spread, but my patch's are blocking the pain.
I'm so sorry Alt...does not seem like a good couple of days for you. I am so paranoid about my clonidine patches coming off...since getting them I have been doing so much better with the nausea, dizziness, poor balance, blurry vision, etc. And just overall I feel better because I don't have those things happening as much...not unless the pain gets up to that 9-10 level. So if I have any trouble getting the clonidine patch on I put the little pad over it that came with the patches...same goes if it feels like any of the corners are loose or anything. I hope you feel better soon...and hope to God that you are not experiencing spread.
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Old 01-20-2012, 08:23 AM #4
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catra,
It's funny because my husband woke to find the patch was on him. lol.Yeah! I hope its not spread, I can't afford it to be in my back. Just the thought scares me.
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I'm so sorry Alt...does not seem like a good couple of days for you. I am so paranoid about my clonidine patches coming off...since getting them I have been doing so much better with the nausea, dizziness, poor balance, blurry vision, etc. And just overall I feel better because I don't have those things happening as much...not unless the pain gets up to that 9-10 level. So if I have any trouble getting the clonidine patch on I put the little pad over it that came with the patches...same goes if it feels like any of the corners are loose or anything. I hope you feel better soon...and hope to God that you are not experiencing spread.
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