Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-14-2012, 06:18 PM #1
msjanice12 msjanice12 is offline
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Join Date: Jan 2012
Location: Pittsburgh PA
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10 yr Member
msjanice12 msjanice12 is offline
Junior Member
 
Join Date: Jan 2012
Location: Pittsburgh PA
Posts: 18
10 yr Member
Smile RSD in Mouth?

Long long story ... as is the case with all of us so I'll try to be brief as possible. Pain in gums ... at that point I still had teeth in bottom so kept saying my teeth hurt ... back in 2005 after 8 root canals ... pain got worse over years ... dentist, root canal specialist, oral surgeon said there was NOTHING on my Xrays and I couldn't have pain in all of my teeth because they were all root-canaled ... they would say. Two years later: Got worse after a retreatment of a root canal and doctor said it would be okay now because it was probably referred pain ... needless to say ... still had "Toothache" in all of my bottom teeth. All along I knew there was something strange going on ... but no one would listen to me ... finally ... six years or so later ... was going to have all crowned and get new partials but dark spot finally showed up on one of the teeth and the oral surgeon pulled it ... I asked him if there was bone lost and he said no ... no explanation ... was told I wouldn't have pain anymore ... I knew better and sure enough I eventually could not even touch my bottom teeth let alone eat. Had all lower teeth pulled in May 2011 and the pain got worse and now have lower dentures and can not eat very well ... pain all of the time ... especially when chewing ... had RSD in wrist in 2002 and RSD in elbow in 2003 after broken bone in wrist and next year in elbow/with two surgeries. Hum, putting 2 and 2 together and think I have RSD in lower gums. Now have seen another dentist, oral surgeon, neurologist, neurosurgeon and finally a pain doctor. Brain scan, blood work, Xrays show nothing ... doctors don't even want to talk to me ... they escort me out of their offices especially if I mention that I think I have RSD in lower gums ... oh well, going into 7th year ... no one believes me ... final doctor ... pain specialist ... started me on neurontin last week ... hope this works ... thanks! Have joined multiple support group websites ... would be happy to hear from anyone who may have heard of such a situation ... thanks! Basically am fairly contented right now ... have learned to time my eating so that I get the healthiest food into my system when my mouth has rested ... it gets worse the more I chew ... very limited as to what I can eat ... other than the pain when I eat ... life's good. Retired two years ago ... pain in back and shoulderblades and neck and up into head but don't think these are related to RSD ... very serious arthritis in back ... curved spine ... but as I mentioned ... don't think they are related to the mouth thing. Any thoughts?
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