Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

View Poll Results: Anyone heard of RSD in mouth?
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Old 01-14-2012, 06:37 PM #1
ginnie ginnie is offline
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ginnie ginnie is offline
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Default Re: welcome msjanice

I want to welcome you to Neuro Talk. There are people here who will try and help you. Lots of compassionate folks here deal with RSD. Someone will be along to get you to the RSD Forum. For questions concerning your Teeth, or possible connection to root canals/ RSD trigger?, maybe Bryanna can address that issue. You can private message her, or go to the Dental forum. I do know what RSD is, and I am sorry you suffer with that. I had never heard of it in the gums before, but I'm not a doc. just a member here on NT. I try to say hello and let you know that you found a good site, where the members really try to help with medical problems. I hope that someone can answer your questions about RSD in the gums, it sounds miserable as it effects your ability to eat well. I am glad you stick to a good program of nutrition when you do eat. I know how important that is with any medical problem. There will be others who will help you navagate on this site. I still am a beginner in this dept. and have alot to learn, regarding getting people to the correct forum. Forgive me for that I am getting better as I go along. Please do keep asking questions, and the responce will be coming along. take care, ginnie
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Old 01-14-2012, 09:17 PM #2
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First of all msjanice12, welcome to NT. Second, sorry to hear of the problems you are having.
I have to tell you that my RSD began in the right side of my face. I bit a rock that was in my food in a restaurant. I lost my three back bottom teeth after having root canals that didn't work and then extractions. I then got implants and a bridge. The pain never went away until I found (with the help of my dentist) the doctors to diagnose and treat me for RSD. My pain was along my jawline and in my cheek area. They gave me stellate ganglion nerve blocks and got things under control. This was back in 1991/1992.
In 2009, I hurt my right hand and developed RSD there. It has since spread from there to my left hand, arm and leg. Blocks and medication didn't help me this time around (got two spinal cord stimulators implanted in 2011).
The important thing is to find the right doctor(s), which is very difficult. Be persistent and don't give up.
All the best,
Nanc
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