Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-17-2012, 11:35 AM #1
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I do get the full body sweats...particularly at night...but to be honest this only started when mine spread out to my entire upper body and I didn't get it when the RSD was just in my left ankle (where it started).

I haven't noticed any difference between sleeping on different mattresses unfortunately...as I have to change positions all night long and cannot sleep/lay on my back at all because the pain is just too severe there to get comfortable. However...I have had to sleep on the couch for the past year because I cannot safely navigate the stairs all the time and since there is no bathroom upstairs in the bedroom it just isn't a good idea to sleep up there. So I honestly haven't exactly tried a lot of options.
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Old 01-17-2012, 01:56 PM #2
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Hello and welcome, so sorry you too are suffering. Sleeping for me is also a challenge I have yet to beat. I thought about the sleep number bed, but then I said I was going to try out the memory from topper. Right now I am just using pillows for support. It's kind of confusing because My extremities are cold but I wake up feeling sweaty as if I never bathe. I have become very embarrassed so I am always in the tub because I have never been much of a sweater until now. All soaks hurt, but I have found those diabetic soaks and the comfy ones with the vitamin E in them are very tolerable. I have severe pain in my scapula so I always keep a pillow for support. I suggest that you use whatever you can by trial and error to support your most painful areas. I hope this helps.
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Old 01-17-2012, 03:07 PM #3
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Default Hello Joygail

I want to welcome you to Neuro Talk. You have found a very compassionate site. There will be others along to help you find the proper forums. I am sorry you have RSD. There are quite a few on this site who suffer from it as well. I hope you get many responces, and that your questions can be answered. There also is alot of support here. Glad you found this site, ginnie
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