Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-28-2012, 08:24 PM #11
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No they are actually a new company started by two guys.

http://www.toms.com/

My daughter swears by them. She wears nothing else and has full body. Started in her left ankle.

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Sandy,
Did this company use to be Tom McCan. (I think that is the right spelling)
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Old 01-29-2012, 01:06 AM #12
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Hi Cindi1965 and All,
I gave up all my shoes too since I've had RSD which started as trauma in my right foot and spread EVERYWHERE so I have been full body for almost seven years. I kept all my shoes for about two years and then found out our homeless shelter nearby needed things for the kids and families there (as it was right before Christmas). So, I packed up everything I could not wear (even my sponge bob flip flops;.( ) and donated all of them to the homeless shelter. I have small feet (women's size 6) and I had alot of boy's boots that my son had grown out of but I was able to use for work so I gave them to the kids and all my other nice shoes to the women...along with some work clothes that I was not going to wear. Since then I have given away my entire wardrobe since like we all know when you find something that is comfy you just keep wearing it lol. But it made me feel better that I did that and know it is going to a good cause. It was hard to do to give up the heels that I loved but there is no way I could wear them and I could not see just keeping them. I figure like mentioned above some day when I am healed I can just go buy some new ones since I will have a great job then:.)

I have found the generic Crocs (called Airwalks) that I found in Payless Shoe Stores work the best for me. Crocs have a bar that sits under the toes and causes me lots of pain so I found the generic ones and they are better and cheaper than the real thing. They even make them with fuzzy linings for in the winter and come in all kinds of colors too. I buy them the end of the season and they are even cheaper!! Works for me.
Best of luck to all.
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Old 01-29-2012, 03:04 PM #13
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I gave away most of my clothes too. Betweem the weight gain and (more importantly) the sensitivity now that the RSD has spread to my upper body and I could not handle anything that fit close to the skin there was just no way I could wear most of my clothes. I'm okay with it...I really had way too many clothes anyway. Now I just add an item here or there and I cannot buy anything without trying it on because it's just too hard to tell if a shirt will hit me in the wrong spot or not unless I am wearing it. People were very generous this Christmas and I was able to pick up some stuff after Christmas with the gift cards and money they gave me. So I very slowly start to feel like a more normal person as I find clothes and shoes that work for me besides sweats and oversized tshirts. Not that I care what other people think...it just makes me feel more normal and therefore happier.
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Old 01-30-2012, 04:24 PM #14
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I dont have rsd of the upper extermities yet. But I can't imagine giving away all my clothes. I can't even get rid of the ones that don't fit. lol
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 01-30-2012, 05:37 PM #15
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Quote:
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I dont have rsd of the upper extermities yet. But I can't imagine giving away all my clothes. I can't even get rid of the ones that don't fit. lol
This is how I always was before the RSD...never got rid of ANYTHING...much to my boyfriend's dismay...lol! It was so many bags that I gave away and it was honestly partially a relief (though there were a number of items that were actually difficult because they were my favorites) just to have finally unloaded so many things that I really should have gotten rid of years ago. So now we actually have enough room in the closet for all my boyfriend's clothes...lol!

At any rate...I really hope you are never in the position of having RSD in your upper body. One leg is more than anyone should have to deal with in any lifetime.
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