Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-22-2012, 04:51 AM #11
gabbycakes gabbycakes is offline
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So glad to hear that you are feeling better. I hope everything goes well on Monday and that it was just a bad flare because of the stress. It's so hard to balance the idea that you need to push through the pain and try to be as normal as possible with the idea that you have RSD and need to take care of yourself. It's easy to SAY that we need to do this...but the reality is so much harder to live with.

I used to dream ALL the time and they were always such vivid dreams. I rarely dream now except for a bout of violent nightmares early last year when I was also suffering from hallucinations and taking meds that put me OUT for most of the day. Now I feel blessed to just get 4 hours of consecutive sleep...which is a rare occurance but has become possible since the doctor started me on Amitriptyline. Before that I was lucky to get an hour at a time. I think the more regular sleep has contributed to my success with regaining a lot of function...so I am with you in thinking that getting a good night of consecutive sleep can make a big difference.

I don't think I could deal with a dog that large. Mine is 5 lbs and she seems like a handful at times. Prior to the RSD I only weighed 85 lbs...so that dog is as big as I was...lol! Very sorry to hear that you had to say good bye to your shepard...that is truly heartbreaking when we have to say goodbye to our puppies.

Keep us posted...hope things just keep getting better.
Hi catra121,

I am feeling better and trying to take care of myself and trying to keep stress free.

It was quite an experience walking him in the snow for the first time. He was leaping like a dear, I think he thought if he jumped he would find a spot with no snow. He was hard to handle.

gabbycakes
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Old 02-18-2012, 09:44 PM #12
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Default Dogs r the best :)

Hey gabby I read your post about your doggie.I also have a Pitt , bulldog , and a italina mastiff mix.she is my world.the smartest dog I've ever been around and has been the best therapy of all for me.her name is roxxy.just had to tell u . Hope you are doing well swetty
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Old 02-19-2012, 05:42 AM #13
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Hey gabby I read your post about your doggie.I also have a Pitt , bulldog , and a italina mastiff mix.she is my world.the smartest dog I've ever been around and has been the best therapy of all for me.her name is roxxy.just had to tell u . Hope you are doing well swetty
Hi Dan,

Good to here from you.Wow, pitbull, mastiff mix she must be huge.Dogs are the best medicine I agree. I have to tell you I really hesitated to get the pit bull mix but so happy we did. We wanted to go the rescue way because there is so much going on with abuse of animals at least we could do are part in some way. Most rescue facilities have many pit bull mixes. When we first met him he was 6 months and very friendly, the trainer there did a great job training him. So we decided okay, let's do it. After the formalities at the shelter, I say formalities but they really checked us out. It was a manitory 4 business day wait until you could pick up the puppy. They called our vet, our animal control in town to make sure we renewed our prior dogs license each year and then they give him a bath, nails and he was ready to go. He is 14 months old now, he goes for a check up next month I'm sure he's 100lbs, and he is so happy and thinks he's a lap dog. Can still jump a good 4 feet in the air like he's 10lbs. He is so strong and muscular I have never seen a dog like this, he has those great dane long legs he's amazing. Pitbulls are a great bread but I'm learning it's the way they are treated. You can see they have a sense of meaness but only if provoked. He's a great dog and we just love him so much. He is definitly a Mamas boy also and I love it.

Maybe you can give me a suggestion. He still jumps up on people when they come in the house or we see neighbors outside walking, he's not mean or anything but he is so big I can see it gets annoying to people. But he really is only getting excited and we have tried everything to get him to stop. Any suggestions?

Hope you are feeling well these days.

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Old 02-21-2012, 11:58 AM #14
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Wow gabby, your dog sounds amazing.my dog is disciplined to an extent.but when someone is in my house and try's to leave , my dog goes crazy cause she doesn't want u to leave.also every ups truck or fed ex truck she can hear a mile away and goes nuts.she knows that's who brings her food and treats.my advise is pet smart .they have a training program there that is really helpful and fun for both you and your new family member it's once a week and it's at your local pets art store .u are there the whole time with your dog and other dog owners and the dogs get to interact with each other.I think they start out at about 10 or 12 weeks old.if u are up for it I think you would like it .I'm glad to here you are feeling better .ttys , they
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Old 02-22-2012, 01:55 AM #15
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Wow gabby, your dog sounds amazing.my dog is disciplined to an extent.but when someone is in my house and try's to leave , my dog goes crazy cause she doesn't want u to leave.also every ups truck or fed ex truck she can hear a mile away and goes nuts.she knows that's who brings her food and treats.my advise is pet smart .they have a training program there that is really helpful and fun for both you and your new family member it's once a week and it's at your local pets art store .u are there the whole time with your dog and other dog owners and the dogs get to interact with each other.I think they start out at about 10 or 12 weeks old.if u are up for it I think you would like it .I'm glad to here you are feeling better .ttys , they
Thanks Dan that's a great suggestions. He interactives with other dogs great. We have a incredible dog park in our area and he just loves it. I'm going to look into the Petsmart School. I just want him to stop jumping on people that's really the last thing he needs to work on. He just gets so excited when he see's people and just like humans he has his likes and dislikes. Thanks again. Feeling better went a little backwards this week but not to bad.

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Old 02-23-2012, 10:04 PM #16
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Hi gabby,I hope u do the pet smart doggy school ,I think both will enjoy it.,my township just denied a doggy park in the area.I live in nj eggharbor twp. But there is a fenced off doggy beach in ocean city.my dog lives it and ao many happy dogs running around.hoody keep getting and feeling better
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Old 02-24-2012, 06:56 AM #17
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My mom has had really good results with her dog at Petsmart classes. She has been going for I would say 4 or 5 months though cause she is trying to train him to be a therapy dog. They have different levels of classes
Sorry I am late to this but glad you are feeling a little better though sorry for the ruff spots. I can relate to stress and lack of sleep impacting. Sending warm thoughts
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Old 02-24-2012, 10:36 AM #18
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Hi, Hope you are feeling well or at least better. I have cervical issues as my main problem (ACDF C5-6 C6-7 12/2/2010). I recently had a diagnosis of RSD by a vascular surgeon at LIJ and then went to a pain specialist who does not feel it is RSD but rather sever Raynauds. I think you stated that you go to NYC to see someone for RSD. It is is allowed can you pass on that information to me. The pain specialist wants to do an EMG and a Stellate Ganglion Block to see if he is wrong and it may be RSD. Not sure how I feel about the block, but willing to have an EMG. Any thought?
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Old 02-25-2012, 02:32 PM #19
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Hi gabby,I hope u do the pet smart doggy school ,I think both will enjoy it.,my township just denied a doggy park in the area.I live in nj eggharbor twp. But there is a fenced off doggy beach in ocean city.my dog lives it and ao many happy dogs running around.hoody keep getting and feeling better
Hi Dan,

My parents live in Strathmere, NJ in the summers, that's where I spent my summers growing up!! I now live in RI, "The Ocean State," but drive all the way to the Jersey shore to go to the beach. My dog loves the beach, too!

xoxo Sandy
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Old 02-25-2012, 02:34 PM #20
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Hi, Hope you are feeling well or at least better. I have cervical issues as my main problem (ACDF C5-6 C6-7 12/2/2010). I recently had a diagnosis of RSD by a vascular surgeon at LIJ and then went to a pain specialist who does not feel it is RSD but rather sever Raynauds. I think you stated that you go to NYC to see someone for RSD. It is is allowed can you pass on that information to me. The pain specialist wants to do an EMG and a Stellate Ganglion Block to see if he is wrong and it may be RSD. Not sure how I feel about the block, but willing to have an EMG. Any thought?
Dr. Richman at the Hospital for Special Surgery just opened the Center for Brachial Plexus injury in NYC. He has an awesome reputation.

Good luck.
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