Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-22-2012, 12:59 PM #1
jeany jeany is offline
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Join Date: Jan 2012
Posts: 2
10 yr Member
jeany jeany is offline
New Member
 
Join Date: Jan 2012
Posts: 2
10 yr Member
Red face Newbie Says Hello!

Hi everyone!

I hope I am posting this correctly...I have been a member for 2 minutes and have no clue what I am doing yet! Just wanted to introduce myself and make some new friends and perhaps connect with people that may be in my shoes. My name is Jeany and I live in WI. I am having a permanent pain pump Feb 20 and am scared to death in a way. I had the trial in Dec and ahhhhh it brought almost 65% relief! What a miracle--I thought I died and was in Heaven! 4 years ago I fell on melting icecubes at my work--landing on my right hip/butt area. Had 2 surgeries, one for a labral tear in my hip and the other for pudendal nerve entrapment...then I got RSD in my groin, butt and pubis. I have had almost every treatment under the sun. My pain doc and I have agreed that the pump can help bring my pain down. I have constant groin pain, pubic pain, sharp spasms, vaginal pain, butt pain, hip pain. I am sooo tired of taking pills and want an other option. My doc said I can have the PTM feature of the pump---a device that i can give myself an extra bolus of medicine if I need it. Please anyone out there that has the pump tell me about their experiences---good and bad. I need to know everything I can.

Thanks!
hugs
jeany
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