Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-22-2013, 04:13 PM #21
mellowguy mellowguy is offline
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Smile getting help

It can be hard dealing with the monster. I have had it for 15 yrs. I was diagnosed 4 yrs after getting it. After a long period of just about every medical procedure and now handfulls of pain meds. I felt it was tile to get the anger under control. I actually took the step to see a anger mngmnt. counslor and it helpd a great deal. I had to learn how to deal and get my emotions under control. I would recommend this to anyone who suffers so bad that they lash out at the ones they love. It's like having a 3rd. person in your marriage and it can cause more problems after long periods then some patients will know. Just a suggestion.
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Old 02-26-2013, 02:50 PM #22
CRPSsongbird CRPSsongbird is offline
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Default HI rsdno

Quote:
Originally Posted by rsdno View Post
Hi I wondered if any others with RSD had PTSD (I Do ) Major Depression etc ,I am not sure how this will be taken if it should be talked about by E Mail or a group just for RSD and MI or if it's fine here since Mental Illness like RSD can be brought on by Trauma
Gentle Hug RSDNO

Something that has seemed to help me cope with the stress and depression is going to a Psychologist. We're doing hypnotherapy and emg heart math. It is really relaxing and that can be 1/2 the battle with RSD. You're in pain which makes you tense up which makes the pain worse and so on so forth. I feel calmer and in a little less pain, also more confident and sure of myself which is a bonus. This condition is sooo stressful, it bleeds into everything else in your life and the therapy truly helps me regain control of what I FEEL. It might be something you want to look into!
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Old 02-28-2013, 04:45 PM #23
katcorn katcorn is offline
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Frown Depression and RSD

Hi rsdno. I have RSD in my left leg. I used to be energetic, went to the gym, and danced. Since the RSD took over a broken tibia plateau with two surgeries, I have depression. I take Wellbutrin now after trying several antidepressants. I can't do the things I use to do. Even walking is difficult. I can only work part-time now, and I have gained 25 lbs in the last three years. So yes, I would say mental illness goes along with RSD.
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Old 03-01-2013, 09:13 AM #24
Cocoa14 Cocoa14 is offline
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Originally Posted by RSDJennetta View Post
Hi RSDNO:

RSD pain can give you severe depression. Feelings of helplessness, hopelessness, and the tremendous change in life can drag you down. The pain can give you thoughts of not wanting to feel anymore. For me, having to ask for help was extremely difficult. I was used to helping other people.

I agree with Ballerina. Finding a good psychiatrist (which I am very fortunate to have) and a good psychologist are key. There is nothing to be ashamed about. Living with constant pain and the change in life is something that not many people can deal with by themselves.

I too am on cymbalta which helps with pain and depression.

Awareness of the depression is the first step. Talking about it is the second step. You are ahead of most!

"Change is the only thing that is constant in life"

Jennetta



Jeannette,
Hi, I'm new to forum. If you have time, please please read my thread 'scared, afraid I may have RSD. Your reply would be greatly appreciated.
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Old 03-01-2013, 09:15 AM #25
Cocoa14 Cocoa14 is offline
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Quote:
Originally Posted by CRPSsongbird View Post
Something that has seemed to help me cope with the stress and depression is going to a Psychologist. We're doing hypnotherapy and emg heart math. It is really relaxing and that can be 1/2 the battle with RSD. You're in pain which makes you tense up which makes the pain worse and so on so forth. I feel calmer and in a little less pain, also more confident and sure of myself which is a bonus. This condition is sooo stressful, it bleeds into everything else in your life and the therapy truly helps me regain control of what I FEEL. It might be something you want to look into!
Please please read my thread 'scared, afraid I may have RSD' and give me your thoughts.
Thank you,
Cocoa14
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Old 03-01-2013, 09:26 AM #26
Cocoa14 Cocoa14 is offline
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Originally Posted by keep smilin View Post
I think it is very common for those who suffer chronic pain from as disease such as RSD to experience depression... Let's face it.. RSD is a bear who never hides in the woods!! When reality sets in that this is our life now.. Our normal has now changed... We lost our normal and accepting our life with pain.. It's a hard hurtle to get past... Cymbalta is a good medicine not only for depression but also chronic pain.. So if we RSD people can take it for depression and pain... Why it's a double dipper win!!!

Wishing you all a restful less painful nights sleep,,,

Hugs, Kathy
Kathy, you seem to be very insightful. Please please read my thread 'scared, I may have RSD' and let me know your comments. I need help.....
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Old 08-12-2013, 04:42 PM #27
rsdno rsdno is offline
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Default Hi Any RSDers with PTSD ,Other Autoimmune diseases

I live out in Oregon at Sheltercare.org at Afiya Apartments ,I have well ,I ohhhh ummm I'm not sure ok PTSD from Childhood being Shot 3rice and stepping on a mine . I worked with the service even for them but never served . I was a Corpsman Nurse when our huge construction companies would go to lets say Abh Dhabi I would get a Doctor that was willing to work with me( liaison officer like)and i would get the guys meds if needed and I made excellent money but got hurt a lot .
Here is good advice if you were in Viet Nam in the sixties or seventies and not in the Service tell people right away you werent in the service ,I wasnt even a spy.
Ok my Autoimmune is PsA Psoriatic Arthritis ,Ive had RSD way longer then 40 years but now I have to go through it again the PsA is painful I have almost 2 usable fingers left .I was thinking helium plates ( so I couldnt drop then() but my Autoimmune questione is serious I have Fibro but Doctors immediately think Im an evil pot smoker ,which is ridiculous Im not paying to feel paranoid
Well Im off to my Shrink
Gentlest Hug
Mark
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