......that post before yours is 3 years old!

It would be wonderful if we could get an update!
Really would like to hear from folks who have had these SCS's for more than a year......

I talk to Claudia every once in awhile. Frank does have the SCS in but he has gotten worse due to it going to the other side. The last time I talked to her which was a few weeks ago he is in pretty bad shape. Lots of pain.

I'll see if I can get her to come on and let you know how he is with the SCS.

Ada

hello .......sure has been a long time since i was here.......................

frank still has the scs implanted...he is still on the fence about it.......has been in for over two years now..........

he likes the fact that he can now hold a coffee cup, touch his arm, not hate the water from a shower, the color is now normal, and the swelling is minimal..................however......

the scs did nothing for the pain.........he can now use his left arm, but the pain is still there...........he is on ms contin, oxycodone, topamax, valium, and lidoderm creme...............his pain is still horribly high, he sleeps a LOT to get away from the pain.....his memory is horrible, he is just not a happy camper.................

would he do it again? nope
would he give it up? nope.......................

he has lost a lot of mobility in his neck...........his scs is implanted at the c 2 c3 in his neck...............so he has trouble turning his head.........the battery is in his chest.....right side and does stick out.......it is tender, not really painful, but he has had several bouts of pain thinking he was having a heart attack, but it was all from the rsd and battery tightening around the chest wall......................

he had another trial to see if they could get coverage on his right side, but they could not get it in, as his arms were spasming so badly...............his rsd is in both arms, his knees are affected, and his legs just give out with no warning.....................RSD is really a shi**y disease.!!!!!!

mine is at a minimal balance................warmer weather in florida is a Godsend, no more cold snowy winters..............i have less pain than before, and i feel blessed for that.................

do your research.....it is a decision only YOU can make................everyone is different......................

hello to all my oldie friends... .............

It amazes me how many people are coming here on a daily basis asking about the SCS/Pain Pumps ! And for those who don't know, a new forum specific to SCS/PP discussion has been created. Here's the direct link to get there
Click on:

http://neurotalk.psychcentral.com/fo...prune=-1&f=118

It is listed in the main menu as a subforum in the "Medications" section

Lots of new testimonies there and lots of questions being asked......
So much support is needed!
I get tears in my eyes when I read of these battles with RSD, and the ones who get the SCS and end up with RSD spreading.....

All I can do is pray.....
I'll never understand RSD and why so many wonderful people have to be plagued by it.....

I'm so sorry about what's happened! I hope there's something that brings him relief and peace again. God Bless you both and know that lots of prayers are being said for you.