I have a nasty complex version of Rsd. The usual muscle wasting etc but also the bonus secondary where the system totally packs up. 3 weeks ago I was nearly gone because all the reactive nerves were destroying themselves faster and faster. I had a miracle 2 weeks where I could actually feel some activity in the body and I even managed to walk for the first time in months. Sadly It's gone away again. Does anyone on here have any experience or knowledge of how to live without a reflex system as I'm 46 and have a nice wife and the medics cant stop this.This is a recent malfunction as I have had standard bodywide Rsd for 17 years. If it helps I was able to contain that type with an exercise programme- basically training all the time.Wishing everyone on here all the best.God bless.

scots ox
sorry to hear you are having such a horrific time with this monster. I have nothing to lend you except my support. But there are other's on here who might. Keep praying!