so, i'm having a bad day today... i'm sure y'all know exactly what i'm talking about! i was looking through some stuff i posted on my facebook & i thought this was very fitting. i originally wrote this in october '09...thought i would share. hope y'all enjoy!

so, i’m in more pain today than normal and it’s my fault. i had a dr. appointment yesterday and then later went window shopping for computers. it was the first day i had really been out and moving around since i got out of the hospital.

i learned from the dr. that it is just going to take time for the new clot to dissolve, scar over and heal. after it does, he is probably going to go in the vein and perform an angioplasty to try and re-open areas of my vein to allow more blood flow. i really like this dr. but on more than one occasion he has warned me that my ‘quality of life’ is never going to be the same. there is no cure for all the damage in my veins and unless he can re-open the veins, they are just going to keep getting worse. i will probably just keep developing clots due to lack of blood flow and will continue to develop phlebitis (inflammation of the vein). i have been dealing with this since may 2003 and every dr. since then has warned me about the possibilities of what this condition will do to my leg and how it will effect my ‘quality of life’.

i understand these dr.’s don’t know my personality or me that well but obviously their definition of ‘quality of life’ and mine vary greatly. i know for a fact that i will be dealing with pain to some degree for the rest of my life. there are more things than i care to admit that i can no longer do and several limitations on things that i can do. BUT, those factors have absolutely no bearing on the ‘quality’ of my life.

just had to get that off my chest...


this was written before i developed rsd but i still feel the exact same way. even on the bad days.

I often think that a lot of doctors just don't seem to get it when it comes to quality of life. I've found that for most that doesn't even seem to enter their thoughts at all unless I bring it up...same goes for the lawyers and insurance companies. I've realized that if quality of life is important to me then I have to take charge and make sure that I am making decisions that will give me the best quality of life possible...even if that means going against the doctor, attorney, or insurance company advice (which usually all contradict each other anyway...lol).

Sorry that you are having a bad day. We all have those from time to time. Hope you feel better soon.

I'm sorry to hear about your bad day and the history you have had with blood clots. Just remember that everyone is different and everyone will experience things differently. Dr.'s can only give you generalized information and what is the norm from there past experience. Doesn't mean that you are going to be the "norm" also remember that new treatments are becoming available everyday.