Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-09-2012, 08:44 PM #2
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catra121 catra121 is offline
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catra121 catra121 is offline
Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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I completely understand your relief at finally having a firm diagnosis. RSD is a horrible thing and I am sorry that you have it but now that you KNOW what it is you can finally start moving forward. Life may never be the same but realize that it can get much much better.

The most important thing that you need to understand as you begin treatments is that there really is no miracle treatment. I made the mistake of thinking that I would get a lumbar sympathetic block and it would take my pain away and everything would be fine. It didn't and I felt crushed. Just remember that what works for one person doesn't necessarily work for another so instead of being discouraged by failures stay strong and just move on to the next thing.

And realize that even the treatments that work are slow. Physical therapy is SO important in terms of getting the function back...but it takes time...months and months. And when it comes to getting enough pain relief so that you CAN do the therapy it is often a matter of using a lot of things that provide SOME relief (no matter how small) rather than there ever being one thing that just takes away a lot of the pain.

Stay strong...having this diagnosis is the first step to getting your life back. I know the future can seem dismal but you need to stay focused on working hard to get your health back. It takes a lot of committment and hard work on your part...the doctors and therapists can only do so much. A lot of it has to come from you. If you feel yourself starting to lose hope or having a difficult time coping, definitely consider seeing a therapist. Our mental health is just as important as the physical...especially when you are dealing with a lifelong chronic pain condition.

Remember that we are here for you too. It helps to talk to people who really understand what you are dealing with on a daily basis. That support and understanding can help keep us sane. Ask any questions you need to and feel free to vent about anything.
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