Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-19-2012, 01:16 PM #1
smplylst smplylst is offline
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Join Date: Feb 2012
Posts: 2
10 yr Member
smplylst smplylst is offline
New Member
 
Join Date: Feb 2012
Posts: 2
10 yr Member
Default RSD and my 13 year old *new*

My 13 year old daughter underwent surgery in November for a 7th Cranial nerve palsy. Although the surgery was a success, something during the 10 hour surgery went wrong.

She lost the use and feeling in her left leg. At first they had said it was "normal" due to the positioning during surgery and that given a week or two she should be fine and all will be back to normal. After about two weeks she was diagnosed with foot drop. Thankfully this has resolved and she no longer needs a brace. She has regained most of the feeling in her leg, although the process was extremely painful. As the nerve was coming back it was (as she describes) popping and shocking her. She would cry out in pain. The doctors have said it is RSD. She is walking again, but describes her foot as feeling like it is on a pillow. There was a point where if you even blew air on her foot it was painful for her, so walking is a HUGE step. She has also noticed that she can't feel temperature with her foot. internally it can feel cold, but if she puts it in HOT or COLD water she can't tell the difference. She is going for an EMG next Monday so we can have a block done in hopes that it will put this to rest for good. My question is mainly with the temperature sensation, I haven't seen on these boards or in other searches where this is associated with RSD.
Even her nuero seemed a little perplexed by this. I should also mention she is on neurontin 100mg 2x's day.
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