The temperature thing is a bit odd.....but what I've grown to know is that every case of CRPS has individual characteristics and symptoms. The hypersensitivity symptom is VERY common with CRPS.

I have been using gabapentin (generic for neurontin) since diagnosis; it is a godsend for me and is often the first drug that is diagnosed for this condition.

I will tell you though that 100 mg twice a day is a very low dosage. Who prescribed it? I would ask them about the dosage as she may not be able to get the full effects of the drug if the dosage is too low or if it isn't "stepped up" to a dosage that is appropriate for her condition.

Good luck to you guys and keep us posted!

smplylst

Welcome to neurotalk. I am sorry to hear about your daughter. I have to agree that the dosage of her neurontin is extermely low and should be adjusted. This will help her with the pain. Fortunately she is young and with aggressive therapy and interventions such as blocks there is a chance of remission. As far as the temperature difference. The only time I was like this was in the begining when my foot was swollen.
Feel free to ask questions make comments. We are not here to judge we are people learning from one another.