Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-23-2012, 08:10 PM #7
debbiehub debbiehub is offline
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Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
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Quote:
Originally Posted by birchlake View Post
I just got back from a chiropractor treatment. Helps me greatly and it is the treatment that I MOST look forward to.

Everyone is different and every medical professional is different. Boy are we all finding that out! It is so cliche, but so true.

You have to find what works for you. And that is a lot of trial and error. For me, it's a cocktail of meds, 3 hours of my own time daily on therapy, exercise, soaks, stretches.....and the help of my physical therapist, chiropractor, pain management doctor, GP and on occasion, my massage therapist. CRPS responds best to a "multi-disciplinary" approach in my opinion.

It took me over a year to develop a treatment protocol that works best for me. And some constant "tweeking" is necessary. But I can honest say that life is a lot better for me than any time since I was diagnosed in 2008.

But you must be your own advocate. And you must try different things. And get LOTS of opinions. I found some professionals that didn't have a clue about this condition and others that are quite knowledgeable.

Good luck to you!
Mine has been spreading for twelve years now...total body muscle wasting. It's very scary, I still work but use a wheel chair to get around.

Deb
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