Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-04-2012, 07:34 AM #1
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Quote:
Originally Posted by betsykk View Post
Dec 09. Arrogant guy with a shaved head in his late 40's.
Might the arrogant doctor at the John's Hopkins Blaustien. Treatment Center who failed to provide you with approprite tratment for you Complex Regional Pain Syndrome be Dr. Michael Erdek?

If so this is very scary. Dr. Erdek is listed as the director of fellowship training at Blaustien.
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Old 02-29-2012, 07:44 PM #2
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Originally Posted by dreambeliever128 View Post
This is for a friend. Has anyone ever went to J H. for RSD?

Ada
Hi,

I went to the Blaustein Pain Clinic, saw Dr. Raja and was not pleased. Most of the time was spent with a fellow telling me that they couldn't do anything for me and that I have too many drug allergies and have exhausted the treatment options. I was shocked because I'm pretty sure that Dr. Raja is on the Scientific advisor board of the RSDSA. He is supposed to be a pretty top name when it comes to RSD. I have heard.

Lindsay
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loretta (01-09-2013)
Old 02-29-2012, 09:18 PM #3
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I also saw Raja who was less than impressive. I had to explain to him what Low Dose Naltrexone was. He had no clue-thought I was being treated for alcohol or drug addiction. When I explained to him that in a low dose, such as 4.5 mg. it modulates activity of glial cells to act as a neuroprotectant and suppressant of inflammatory responses, he looked at me like I had two heads. Also seemed a bit embarrassed in front of the resident that the patient had to educate the doctor regarding a treatment for chronic pain.

The only thing Raja could offer me was a second Spinal Cord Stimulator, despite a detailed report from a top neurologist detailing the action of the spread caused by the first one that failed. When, in utter disbelief, I asked Raja to produce solid research demonstrating the safety of SCS for CRPS he became defensive and indicated that there was noting he could offer me. Sadly, the resident in the room looked shocked that Raja would brush off the report of the neurologist and additionally that he had no response to my request for proof of a treatment that had already maimed me.

When it comes to the Blaustien Pain Treatment Center at Johns Hopkin's it is consumer beware!
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Old 03-03-2012, 08:02 PM #4
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Thanks for the replies. I will let my friend read this. I have heard the same rave reviews about the Mayo Clinics. LOL When you don't get any good reports about something then you know it's most likely true.

Ada
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Old 07-27-2012, 12:20 PM #5
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I was at JH for 3 years aggressively seeking diagnosis. They never caught my CRPS and instead operated on me, causing spread. Now my CRPS is stage 4, irreversible damage.

Quote:
Originally Posted by dreambeliever128 View Post
This is for a friend. Has anyone ever went to J H. for RSD?

Ada
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