Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-31-2012, 06:50 PM #1
Blueangelgal Blueangelgal is offline
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Quote:
Originally Posted by alt1268 View Post
Neurontin is what a lot of us are on and it does help to some decree. You need to get to an experienced dr. to start blocks, PT, etc. Just remember "NO ICE" that is a big no no with RSD. I have to agree with everyone else. RSD has no age. There are lots of children with RSD.
I saw a new doctor this past Thursday who seems to know a lot more about RSD. He wants to do a nerve test and go from there. Mom said as of right nw things are loking good that I most likely don't have RSD, but she wants to see how the nerve test goes. Thanks everyone fr the advice and help, having somewhere to put things into words makes a big difference. Mom has also sat with me and read some posts. She thinks it's great that there is a place where people with RSD can talk and said this would have made her experience better when she was first diagnsed because she could have found someone who understood what she was going thrugh.
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Old 04-02-2012, 08:48 AM #2
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Originally Posted by Blueangelgal View Post
I saw a new doctor this past Thursday who seems to know a lot more about RSD. He wants to do a nerve test and go from there. Mom said as of right nw things are loking good that I most likely don't have RSD, but she wants to see how the nerve test goes. Thanks everyone fr the advice and help, having somewhere to put things into words makes a big difference. Mom has also sat with me and read some posts. She thinks it's great that there is a place where people with RSD can talk and said this would have made her experience better when she was first diagnsed because she could have found someone who understood what she was going thrugh.
Hey Jessica! So happy to hear that you found a dr that knows about RSD, they are hard to find!! Good news that the neurontin is helping, hope it continues. I couldn't tolerate it, but I read on here that a lot of folks take it with successful results. I also hope the nerve test goes well for you. Please keep us posted!

All the best,
Nanc
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Old 04-02-2012, 09:17 PM #3
Imahotep Imahotep is offline
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I'm aware of no evidence it runs in families and this has been investigated.

Of course there are familial similarities that could cause onset in specific circumstances but it's unlikely in any given circumstance.
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