Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-22-2012, 10:32 PM #4
kathy d kathy d is offline
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Join Date: Nov 2006
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kathy d kathy d is offline
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Join Date: Nov 2006
Posts: 327
15 yr Member
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Hi Catra,
I know what you are talking about with the patches scenario. I had used fentanyl patches for five years and was NEVER able to sit in the sun again or be the slightest bit warm during that time. It was hard for me to even take a shower as right afterwards I would fall asleep due to the fact that any time I got warm (like from the shower) the patch releases more because of the heat and if it releases too much quickly you can have a heart attack (not good). I had to stay away from heating pads, space heaters, or anything that would cause me to have an increase in body heat. It stinks but now after getting off all pain meds for over a year now and finally being able to sit up for longer periods of time I am really looking forward to getting some sun this summer. Of course end of last summer...I actually wore shorts and went to a nephew's party and was made fun of because my legs were soooo white and thin (I had suffered severe atrophy the year before and it never came back). It was actually painful to have shorts on and it was probably the second time I have ever worn shorts out in over five years due to skin sensitivity. So, now I still wear long pants and long sleeve shirts with a light jacket during the entire summer. It has to be about 100 degrees here in the NE PA area before I can even wear shorts or short sleeved shirts. Who knows...maybe I will live on the edge this summer and even go in the water when it is really hot outside lol. Good luck with the patch and start to maybe keep a journal of when you experience these problems so that you can maybe see a pattern to it. Like you said you may have to go out early am or late evening to avoid the heat of the day. Best of luck to you.
kathy d
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