I am so so sorry to hear what you are going through. It definitely sounds like your symptoms are fairly "normal" for CRPS. It affects all of us a little differently and yet the same...but different. But don't lose hope...things can get better.

I'm sorry that you had to wait so long to get in to see the doctor and that things got so much worse in the mean time. Best thing I can advise is to keep fighting and to keep MOVING. I truly do understand how hard that is...but if you immobilize or protect the CRPS areas too much then the pain actually gets worse. PT saved my life...seriously. It's such slow progress and it really cannot be approached like PT for other things (like a sprained ankle or whatever) in my opinion. Any PT you do needs to be tailored to your condition and your individual needs. It's all about pushing through the pain but also balancing that with what your limits are and not overdoing it.

I really really hope that they are able to get things under control for you. Definitely continue to research and look for treatment options that would be best for you. I started a new treatment (tDCS) a little over a month ago and it is really doing wonders for me. It's not invasive, has little to no side effects, and is fairly inexpensive (only cost me $300 for the equipment). If blocks are not an option for you (they caused mine to spread unfortunately) then this may be a very good option for you. Unlike many other treatments which simply aim at covering up the symptoms of the condition, tDCS aims at the root cause. There's a thread on here about it and I highly recommend reading through it. It gave me lots of hope that there would be better quality of life out there for me.

Other things that I find that help me with the pain are a TENS unit, ultrasound heat therapy, hot baths with epsom salts, and heating pads. And I have also changed my diet to the 4 Fs diet which is supposed to be good for those with CRPS and inflammation. Don't get me wrong...none of these things take the pain completely away or anything...but added up they give me a much better quality of life and they help me to get through each and every day despite the awful pain.

Take care and if you have any questions, please feel free to ask. This is a wonderful place to get support from those who know what it is like to go through each and every day with this monster. It's also a great place if you just need to vent as well...think we've all been there. Good luck.