Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-03-2012, 06:38 PM #1
mommystime2 mommystime2 is offline
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i asked my pcp in jan 4 another opinion with meds he sent me to a nurologist who just gave me more meds and a horrible bone scan...which was good thank god...saw pcp again earlier this week idk mon or tues he increased some meds shook my hand and walked...so unlike him but oh well...see nurologist again on may 16th. i amd now on 600mg gabapentin 3xday, 200mg tegretol 2xday, and lidocaine ointment or this horrible capsian cream nobody told me not to shower with...major burn from that, im waiting for my bio skin sleeve to be ready by hopefully end of month. its my right arm n hand affected, which is my do everything hand so when it hurts im donel, completely. family tries to help but then i feel useless and hurt inside. i hold it inmost days but somedays i just wanna scream yes im hungry yes clean that up yes i need help cant they look around and see?
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Old 05-03-2012, 06:54 PM #2
LIT LOVE LIT LOVE is offline
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I'd research the Capsacin cream, I don't think it is prescribed for RSD. I had it prescribed by a doc I saw for a short time many years ago. Sorry to hear you weren't warned about the problem with warm water, which opens your pores. (I thought it was listed on the sheet of info?) The problem with it IMO, is you're applying it to to an area that is already dysfunctional. I hated it and only tried it a few times.
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Old 05-03-2012, 07:00 PM #3
mommystime2 mommystime2 is offline
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im never using it again! lol lidocaine doesnt do much either tho
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Old 05-03-2012, 08:02 PM #4
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Quote:
Originally Posted by mommystime2 View Post
im never using it again! lol lidocaine doesnt do much either tho
Trying use the lidocaine just for flares, or if you experience an injury to another area. I feel the cream is stronger initially, but the patches work better. I find they lose effectiveness if worn more than once or twice a week. It's a good thing to have as an option, but is not helpful to rely on daily,IMO. Test how what works best for you!

http://www.rsdfoundation.org/clinica...elines_pf.html
This link state's Capsacin isn't proven to be effective for RSD, though some claim they experience a reduction of pain if it's used consistently (it's supposed to lower substance p).
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Old 05-04-2012, 09:40 PM #5
painman2009 painman2009 is offline
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we know the pain del so here is where u should come to vent. in my house my kids and wife are no longer aloud to ask if I'm alright.(hello the answer is no) and I doubt the answer is something that would make them feel good about. I was the go to guy of the house. its broke i fix it it needs a deep clean I'm your man. organize and big job . thats me. outside inside money, the hard things such as going to work job1 working business job2 and making plays rehearsals. np. now Im missing out on their life and mine. I am only a fraction of the person I was and I live masking how much pain I really feel to make others more comfortable. but still have days where the fight of masking it is too much and I break down. ........This is our story here and others may be better while others are worse but here you have a different kind of family where you can express your pain and despair. advice is given freely here and is so helpful. with out sites like this is how I can live day by day and find a smile for friends and family. good luck to you.
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Old 05-05-2012, 07:56 AM #6
mommystime2 mommystime2 is offline
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thank god every day my husband is in good health..basically. we recently found out when he has to be out of work a week it sets us back months. they dont ask if im alright, they just saw let me do it or want help? grrrr if im struggling then yes i need help if u see me crying from then do it for me. i already feel like an invilid. they know i csnt zip my coat or wash my hair or tie my shoes or use a can opener...i cry i blow up because i have no other way, i tried just going to bed and they bug me so that dont work. i miss out on school things for fear of being bumped or its too cold out to go. i cant reel in a fish anymore so fishing is out too
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