Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-22-2012, 10:19 AM #1
mommystime2 mommystime2 is offline
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Default seriously....dr makes me mad

my great turned into bad after waiting 1.5 for dr to arrive and say they cant help me, are u kidding me? i told him if i cant use my arm because of pain then i will lose my arm....im supposed to hide my pain and deal while researching my disease.....
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Old 05-22-2012, 11:57 AM #2
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Some doctors just make me sick. I am so sorry you are currently dealing with one of those. I know that many times there are limits to what they can and cannot do and that it may be a long road before they find what works for you...but a GOOD doctor will always have you leave more hopeful than you were when you got there when it comes to RSD. I hope you get a new doctor soon who is actually interested in helping you.
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Old 05-22-2012, 07:22 PM #3
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i went over 2drs heads and got an appt w pain dr next tues...i was told it would be july...lol im a totally ****** when needed
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Old 05-22-2012, 10:53 PM #4
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you know. I think we should shout out to dr,s hello I'm in frikken pain HELP!!!! and HELP NOW!!! if this is RSD the longer you wait the worse i become hello. read a fricken book about it will you!!!!! Its the one most important part about RSD is do not waste time the faster you are treated the better off you will be. none of this hurry up and wait B.S.
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Old 05-23-2012, 07:04 AM #5
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i hear ya....back in sept 2011 the burning was so bad, they told me ice it, after 2weeks it was worse, they said it was tendonitis, i was fitted with exos remolded braces, didnt help, elbow was fitted with a straight elbow compssion pull on wrap as well, didnt help. by jan i was given nerve conduction test, i screamed in pain, was then put on anti in flammatory meds, n flexeril, no nerve problem, in march finally diagnosed with crps, then gabapentin, a bone scan which was good, then tegretol, then weened from tegretol, increased gabapentin to 1800mg a day, added condine may 10th, now off them, i have lidocaine ointment and hydrocodone til pm dr sees me.....8months of this pain and they why i am mental unstable? go figure
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Old 05-23-2012, 10:35 PM #6
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I've herd about the lidocain ointment (does is help?) ild be afraid of putting it on. PT tried the icy hot .(that sucked real bad) I have mentioned the lydicain to my PM dr and I feel as if he is ignoring me as i never get a response. I feel as if while I'm speaking to him all he is doing is refilling the scripts I'm already on and thinking about what show might be on tonight. gabepentine(neurontin). didn't work out to well for me . good luck to you. I suggest that you keep a running chart on each of your appt.'s with your dr,s and keep notes about what is spoken about. maybe that will be better if you can show the dr yu are listening . if not then it is something good to throw.(LOL)
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Old 05-24-2012, 06:28 AM #7
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the lidocaine ointment helps for sensitivity mostly, some pain control but very lil. its slimy but thats ok i buy stock in rolled gauze. gabapentin is out for me, didnt do much but mess with me
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