Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-17-2012, 11:23 PM #3
Dubious Dubious is offline
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Join Date: Jan 2009
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Dubious Dubious is offline
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Join Date: Jan 2009
Location: Paradise
Posts: 855
15 yr Member
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Quote:
Originally Posted by reluctant@thetable View Post
Sorry to hear that you are going through this at your age but know that you are not alone. My friend's, friend's daughter has this and is about your age. What has helped is treatment at a Children's Hospital that is knowledgeable in CRPS. She has done aqua therapy for 1.5 yrs. and now is able to return to her dancing.

With that said there are resources for someone your age-

The Reflex Sympathetic Dystrophy Syndrome' website has a page that lists 6 resources for youth and their parents (scroll down on this page) http://www.rsds.org/2/related_sites/index.html

Of note, see that there is a RSD/CRPS Awareness in Teens Facebook page. I would think you could link to other teens going through what you are.

I think you should contact Allison on this site...she was youg too.
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