Hey,
Seems like most people talked about NCT, which I've had two with RSD. First was hell screamed thru it. Second never felt the needle, but it was done by a specialist. If you need for nerve damage diagnosis so you can claim type 2, might be handy, but be prepared it can be awful.
Second, I've taken topamax for two years. It's amazing for me. I've had CRPS/RSD for ten years and it's the ONLY thing that's given me any relief besides pain meds. That said, with this monster different things work for different people. Gift it a few months hope it works. I haven't had too many bad side effects, but good ones like weight loss! Good luck and keep fighting.
Quote:
Originally Posted by KathrynL
I went to the neurologist today, and she agreed with my rheumatologist--the RSD is back and is in my left arm. She started me on topamax and physical therapy. Apparently, I do have two cervical disc herniations, but both the neuro and radiologist say they aren't causing my left arm pain, temperature changes and discoloration.
She also wants me to take off at least two months from work. It's our busy season, which isn't a great time, but at least I don't have to worry about how I'm going to struggle through work in this much pain.
The neuro also wants to do a nerve conduction test to confirm. We're waiting for two weeks though, so the topamax has a chance to start working, which will hopefully decrease my pain levels.
What's everyone's experience with nerve conduction testing? How badly will it hurt? Will it confirm the RSD? How? For my first bout of RSD 8 years ago, I never had nerve conduction testing.
Also, what's topamax like?
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05-28-2012, 08:02 AM
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