My RSD is from TOS, so clothes near my neck/upper back and collar bone area bother me. Combine that with heat intolerence and freq sweating.

My friends joke that I'm lucky I'm a parrothead. I live in tropical sundresses/tankdresses all year long.....even in snowy New England winters.

I can't imagine what those of you with RSD near your feet do. I'm grateful that I don't have issues with footwear.

I take medicines to help ease the pain. And I use mine 5x day for 30 min. @ a time. And once, I told my mom: "A girl should NOT have to have wires in her pants."

And wearing jeans to help mentally is not stupid, I do the same thing. It feels weird to just wear sweatpants all the time, and feel like a bum.

On a trip to Africa 5-6 years ago I discovered mohair socks and got myself 30 pairs to bring home as they feel amazing I've found a link to a web site that sell them but if you are buying a few pairs might be worth shopping around and try find somewhere near to you I have thick medical ultra lose fit and cant imagine being without them now sorry I'm not much use when it comes to jeans I always have to wear lounge ware I try to get them in black so they look like trousers but are lose fit 100% soft cotton have a look around for the socks though I'm sure they will help many more of us sorry its my first post and it won't let me put the link up until I've made more than 10 posts

I have all up given up on pants. My RSD in in both feet and legs. I wear a lot of skirts on the summer and soft sweats in the winter. Not a fashion statement, but it worksQUOTE=SaraMichellee.(:;881667]Okay, I need MORE advice.
What clothes work best when you have CRPS in your feet/legs? I know yoga pants work, but what if you're looking for a more casual look? Are there any types of jeans that work best for anyone?
Thanks in advance! -SaraMichellee.(:[/QUOTE]

I saw that on another forum.(mohair) so i tried it. I guess that too is different for each person cause that just causes me to swell up that much faster and the more i swell the more my socks hurt.. huh...

If it's only in one foot and/ or leg you might try wearing something extra on that limb. It seems to fool the sympathetic nervous system into not noticing the difference (or something). At least I can stay warmer and more comfortable wearing an extra sock on the affected ankle and a wrap on my affected hand. The wrap is much more necessary though.

thats interesting ..I cannot seem to get my feet or legs warm at all during 65 degree weather or less.. is this common

Oh yes.

It's the sympathetic nervous system that is believed to be the culprit in maintaining the pain loop and this is the system that maintains body temperature. There's not neceesarily anything you can do to stay comfortable as you can go straight from too cold to too hot with increasing temperature.

I try to fool it into thinking my affected hand is as warm as my "unaffected". Of course it's not really me who discovered it but it was initially some sort of instinct. It took me years to figure out why I was doing it. It's quite common in RSD patients to do this. We tend to take some dramatic steps to protect the affected limbs. And this protection is from an array of threats.

today i managed a family picnic at my brothers house.. he owns a pool and one of our child like friends went in .. I was with in the splash zone of the pool.No big deal right? well like i said. "child like friend" well he started splashing me.. ok my legs are safe same as arm. well now my back is soaked. and I get a cool breeze. the pain was automatic brain shut off and this was after taking pain killers. my neck and upper mid back were on fire. its like he splashed acid on my back.. I had to take top shirt off .. ohhhh my god!!!!!!! I could definitely use a pain killer that works..i had all my meds taken, and i still felt this.