Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-22-2012, 01:24 AM #1
Lhlowe06 Lhlowe06 is offline
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Default Who do you consider the top CRPS Dr in the world?

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Originally Posted by ballerina View Post
The show has certainly brought the kind of awareness that I could live without. Abdul still performs and adheres to a rather grueling schedule. She still choreographs and dances extensively. I have been following her activities for several years since I am a former dancer. Her age alone is a prohibiting factor in her ability to dance.

One of my neighbors suggested that I could return to dance if I took the drugs and vitamins that "cured" Paula.

I have received similar phone calls from three different friends. One friend said, "you are tough, with hard work like Paula you could return to dance."

Another suggested that I get a personal trainer. "If it worked for Paula it could work for you." I asked her if two years of PT counted?

The other friend suggest I visit Paula's doctor. Hum, seeing the top docs in CRPS in two states, having an excellent team in my own state, and being on the wait list for the top CRPS doc in the world for two years is just not good enough-I need to see the doc no one has ever heard of have a look see at me.

I notice there was no mention of Paula being seen by any of the well known Top Docs in CRPS.

Knowing first hand the kind of daily intense conditioning it takes to be able to keep dancing, particularly at her age, and that Paula has not missed to many beats in that respect I wonder???????

Of course I have not met all people with CRPS but no one I have either met in person or become acquainted with on forums could be in the kind of physical condition and perform in the way Paula does.

"Work Harder" Really????????

Paula is reported to have a "mild case" of CRPS.

Any body out there have that kind of case of
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Old 08-22-2012, 08:45 AM #2
Jimking Jimking is offline
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Quote:
Originally Posted by Lhlowe06 View Post
Any body out there have that kind of case of...
I met one person who has RSD in his arm. Has had it for 10 years and still works. He's told me he has never had a spread issue. My wife's RSD started in her broken wrist and has spread to all her limbs.
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Old 08-22-2012, 08:27 PM #3
painman2009 painman2009 is offline
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My thought on this is ... no one person with this beast has the exact RSD as another, we are different from each other there for how this beast affects us is different. I had an unexpected pleasure of speaking with a family member that has been disabled for years and no-one knew exactly why.. Until I was dx,d with RSD did it come out that this is what she has as well. she was embarrassed to admit it. she was also affraid that others would nit pick and accuse her of being a fraud(as many of us are called) her father was floored when he spoke with me , he said that his daughter( my second cousin) has this and she never explained what it was. when I spoke with her so much came out. the rsd she has affects her legs and arms but she can still run just not use her arms. So the question goes out. that if this is possible for my cousin is it possible that Paula has RSD just the same?? we know what it is like to be criticized by family and friends and people that do not understand this beast. are we being too critical of a star that isnt exactly comfortable with being upfront in regards to her issues. I dont dare compare my pain to anthers. its not a fair measurement. who am I to decide what pain somewhat else feels . sooooo much pain in this world I just wish we could make it all better . we are here for each other. thank god for that and thank god for all of you. ..
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Old 08-29-2012, 07:52 PM #4
suz66 suz66 is offline
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Saw Paula Abdul on the Dr Oz show. Watched it on his website and it was amazing. I have been looking for alternatives to meds and she says B12, Omega 3s and change of diet, including no caffeine, which will be hard for me. You should check it out on Dr Oz's website. Look for episodes and then Aug 27. Blesings to all of you. =)
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